Any non fracture members?

Posted by rudysmom @rudysmom, May 18 7:24am

I guess I’m just looking for some encouraging words. I was diagnosed in February and still working through the different stages of grief/loss. I seem to have more days stuck in depression/sadness.

So, was just wondering if anyone on here has dealt with OP for quite a while and hasn’t fractured? I know you can fracture even if your scores are osteopenia range. I feel like everyday I’m just waiting for a fracture to happen. Im exercising 6 days a week and watching my food intake. I’m just hoping as time goes on this feeling lessens. Sometimes I’m not sure if it’s the diagnosis that’s making me sad or just the fact that I’m getting older, I’m 60, and reality has finally set in.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

ipg | @ipg | 2 days ago

In reply to @meri8181 "@glojo Me Too! Haven’t taken any Meds. I’m turning 76 this summer. Once you start you..." + (show)

@meri8181
What did the very about Native path? Did u discontinue creatine but stay on native path Fortibone? Please advise

meri8181 | @meri8181 | 1 day ago

My endocrinologist said that the collagen should not affect my kidneys.
Same when asking the web.
I’m getting my bloodwork done on Monday so no pill supplements until afterwards. Hopefully my potassium and creatinine level will be better, or normal.

debhatchell | @debhatchell | 1 day ago

I'm 62. Was diagnosed with Severe Osteoprosis last year after my DXA showed a T-Score of -4.0. NO FRACTURES. I'm not a high-risk person, and hope to remain that way...kinda perversely happy to have a legit excuse for not doing risky stuff ("come on, let's do the zip-line") I'm not eager to do.

My stupid doc did NOT pull any blood work, but put me on Evenity. I'll be getting my #11 shot next week. Will do a follow up DXA in June with a TBS (Trabecular Bone Score). I had to make about a dozen phone calls to find a place near me that has the TBS capability.

I am interviewing a new doc to see if she will do blood work to get numbers on CTX and P1NP so we can track the progress/lack of progress during this next phase of stabilizers (either Prolia or Reclast).

I have hypothyroidism so am nervous about Prolia as autoimmune issues are a common side effect.

I 100% get the depression and grief stages. I keep trying to put a positive spin on this, but FU*****K is often my thought. Like I didn't need a complicated disease to navigate. I've been angry at our Western medicine lack of freaking knowledge.

On this site, someone turned me on to the book Great Bones by R. Keith McCormick who spelled out important things like bloodwork and the TBS DXA. I feel like I've had to become a doctor to advocate for myself.

Hugs to you.