Any experience with urothelial with squamous kidney cancer

Had the appt with oncologist April 1. He gave us a glimmer of hope. Because my type of cancer is rare and stage 3 he is figuring out which treatment to try. But at least he'd try a treatment. He's waiting for me to heal from surgery and will do labs and CT end of April. He's consulted with 2 Oncologists at Mayo and some others tomorrow. He is well respected and skilled. I have confidence in him. I did reach out to MD Anderson only because I'm wondering if their center might have a potentially successful treatment not offered here.

@177, any update? How did the appointment with the urologist go?

Hope all goes good with your oncologist appointment

Thank you

Thank you Tanya. I will see about immunotherapy. It wasn't offered to me. Best of luck to you with your upcoming treatment.

Thank you very much. I will follow up with the others you have listed.

I am doing fine surgery. Just healing. I also had a non-cancerous ovarian tumor removed. Which is how my kidney cancer was detected.

My Urologist offered no treatment. I am meeting with a local oncologist tomorrow after a relative reached out to him for me. I believe my Urologist to be a very competent doctor. He used to work at Mayo and said he had reached out to colleagues and mentor. I guess I just haven't been ready to give up hope. I will certainly see about immunotherapy or clinical trials.

Welcome, @177. I moved your discussion to the Kidney Cancer support group here https://connect.mayoclinic.org/group/kidney-cancer/ to help you connect with others who have experience with transitional cell cancer of the renal pelvis and ureter, like @pcondon @vickipm @art5 @kausarzaman48 @sally0526

You may also be interested in this related discussion:
- Low grade ureter and renal pelvis kidney cancer diagnosis. https://connect.mayoclinic.org/discussion/low-grade-ureter-and-renal-pelvis-kidney-cancer-diagnosis/

Like @hmmm (Tanya) said, for some people immunotherapy may be an option. Have you considered asking about available clinical trials? How is your recovery going after surgery?

At the beginning of November '24 I was diagnosed with T3 aggressive high-grade Urothelial Carcinoma with Squamous Cell differentiation bladder cancer, which was re-analyzed as Pure Squamous Cell Carcinoma. I was not able to try Chemo or radiation because they don't work on Squamous so on February 19th I had a radical cystectomy and now have a neobladder. I start immunotherapy on April 3rd as that is all that can be done to try and stop new cancer cells from forming.

What about immunotherapy?