Any difficulty in diagnosis of PMR?

Trust me you have PMR so I suggest you insist on the correct tteatment !

So it is PMR
1. Stiffness in hips especially im the.morning or after sitting down. Sttange sensatiom in inner thighs after rest.
2. Upper arm stiffness and on top.of shoulder. You cannot lift your arm . Bit it doesn?t feel in the joint its in thr muscle.
3. Stiff neck hard to
look right or left. ( this can come and go )
4. In timreuntreated it also affects fingers.
Hope this helps.

Hi @crisco50, my PMR symptoms eventually gave way to a number of strange symptoms - problems seeing out of one eye, short stabbing pains from my ear to my nose, a tender scalp, an itchy torso with no rash, a dry cough, a really stiff neck, loss of appetite and extreme fatigue which was anemia. Turns out it was GCA. Be sure to mention your eye issues to a PCP. I hope it's nothing.

Thanks for your comments. I have thought for some time that it is PMR, in spite of the doctors, and this site has confirmed it as far as I am concerned. I also am reading lots of ramifications of prednisone. I have survived, and gotten quite a bit better, on (large doses of) Ibuprofen with no ill effects to date. After this flareup I will wean back off of it.

Be very careful using ibruprofen in large doses its.very dangerous . Check online side effects and how it can cause bad things to happen to you please. ! Its not the answer to your pain. Good luck

I was initially diagnosed with PMR from my bloodwork alone and symptoms that were around my hips and lower back ... I was hobbling around but not complaining. That was in November 2021. I am getting worse, blood work declining, but my bone density is good despite 20 - 25 mg a day of Prednisone for 16 months ... I am also avoiding diabetic diagnosis despite putting on 30 lbs since taking Pred. These days the doctors (and I seem to have 4) simply don't know what I have. That was very unsettling to start with ... especially for my husband. The biggest issue for me is that my lungs don't work like they used to ... and I dont know if this is Pred, covid vaccines, or just me. As the breathing issue came on like a train going full belt, I don't think it was my body in rapid decline and the xrays and cat scans show no cause. I'm thinking that perhaps all this is Covid vaccine related ... and yes I would take the Covid vaccines again as the alternative could have been deadly. I find this site helpful ... someone to talk to ... and lots of interesting informaton ... and one is certainly not alone. PMR seems to have many faces? I don't ever want to be bitter. Good luck and get well soon.

My Doc warned of GCA naming symptons to look out for
1 Severe headache.
2. Stiff Jaw
3. Loss of being able to feel your temperal pulse. ( the one you can feel on the pillow at night when you lay on your side) )
If this happens urgent care is needed as the effects of this horrible illness can be bad if you have a flare up !!!

required:Call 999 or go to A&E now if:
you have severe chest or stomach pain – these can be signs of a hole in your stomach or gut
you have difficulty breathing, or asthma symptoms that become worse
you get a severe headache, a high temperature or stiff neck, and a dislike of bright lights – these can be signs or inflammation of the protective membranes that surround the brain and spinal cord (meninges)
you have blurred vision or you see or hear things that are not real (hallucination
This is the national healths Servicr in the uk,s website side effectsl warnings. For Ibrofen. As you will see the reference to difficulty btrsyjing symptons so please please just seek advice.

Beathing sorry

Thank you. I was fortunate to have an appointment with an eye specialist yesterday for another problem .. I did ask about testing for GCA. He was kind enough to run some tests during the same appointment. The preliminary results were negative. However, he gave me a list of symptoms to watch out for. He did insist that any sudden vision loss needed to be assessed in the ER.