Any chronic cough clinic patients?

Posted by adkindt @adkindt, Nov 24, 2024

Hello, chronic cough patient, Ajay through one round of testing at Mayo. Back in December for 2 GI procedures. If anyone has had the Ph test and/or manometry for chronic cough, I'd love to hear your experience. Thanks

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@lisalucier

Hi, @mpeters. Here is some general chronic cough information that might be useful:

- Chronic cough
https://www.mayoclinic.org/diseases-conditions/chronic-cough/symptoms-causes/syc-20351575.
This gives an overview of the testing used, but it does not get into specifics about testing for non-pulmonary conditions such as manometry and pH testing @adkindt.

Information on esophageal manometry and the ambulatory acid (pH) probe test is also available, but in different places with gastrointestinal testing:

- Gastroesophageal reflux disease (GERD)
https://www.mayoclinic.org/diseases-conditions/gerd/diagnosis-treatment/drc-20361959
(see second bullet down on ambulatory acid (pH) probe test)

- Esophageal manometry
https://www.mayoclinic.org/tests-procedures/esophageal-manometry/about/pac-20394000.
I know from my own experience being tested for chronic cough and other things, however, that having a real person describe tests you will undergo is very helpful.

I've experienced losing my voice associated with a chronic cough. It's frustrating, makes it hard to communicate and is somewhat embarrassing. This has happened to me in video or phone meetings when I've talked quite a bit.

mpeters - has the loss of your voice due to chronic cough occurred more in any particular scenarios?

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Dear Moderator Lisa

Thank you so much for giving me so much of your time and information. You have allayed my fears, should I ever have to take these tests. My cough is present every morning after awaking, with nasal drip, and at other times for no perceivable reason. My speech therapist asks me to swallow or drink water instead of coughing. My plan is to have a water bottle in my hand as much as possible, to remind me to do those things rather than cough. And to have water right there so I will follow her instructions. From my speech therapist I have also heard about two procedures that I might need, I so appreciate what you have done for me!

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@lisalucier

Hi, @adkindt—welcome to Mayo Clinic Connect. It's a great idea to see if you can chat with others who have gone through the chronic cough clinic at Mayo Clinic. I bet there are others on Connect who have gone through chronic cough clinics or similar elsewhere, too.

I personally had a chronic cough, and the doctors I saw tested me 12-13 years ago for multiple potential causes of cough: gastroesophageal reflux disease (GERD), asthma, sinusitis and allergies. For a while, a gastroenterologist trialed me on GERD medication. But he finally determined I did not have GERD. The end diagnosis for me was adult-onset asthma.

I'd like to introduce you to some members who have mentioned the esophageal pH monitoring test and may have some information for you on their experiences: @auntnanny @jenblalock @tdrell @rebecross @t98. I'd also like you to meet @windwalker.

adkindt, other members have talked about the esophageal manometry test you said you have upcoming in December. Please meet @jackielb @rstel7272 @margaretmary, who may have some information on how this test goes.

How long have you had a chronic cough, adkindt? Is there anything that temporarily brings you relief?

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So, I had the esophageal manometry and h monitoring. The manometry was first, very uncomfortable tube, made my eyes water. They said I did well. Didn't gag or vomit. Lol. Swallowing and esophageal sphincter normal. The ph tube is much smaller. It's weird having that tube in your throat and eating and drinking. Turns out I do not have GERD. So, in February I will see an ENT at Mayo for them to take my chronic cough source.

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