Anyone else learned had PD after anxiety, depression, panic attacks?

Posted by doorman @doorman, Mar 19, 2022

So after three long years suffering from anxiety , panic attacks , and depression…..I find out the cause…drumroll……Parkinson’s Disease. Turns out, my symptoms: loss of smell, constipation, tripping over my own feet, lack of arm swinging, and horrible anxiety, all are EARLY SYMPTOMS OF this disease. Who would have thought. Anyone else in the same boat?

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Profile picture for raebaby @raebaby

On the Parkinson's online support site I read about a man going to be diagnosed to see if he had Parkinson's. The female doctor asked him ,"if he could still get it up?" He was embarrassed and lied saying, "yes." She then said, "Then you don't have Parkinson's."
Yes, sex was out of the picture. I don't see how a body pillow will help if he is still making the bed shake with his thumps and bumps.
This sounds awful, but once when he woke me up thrashing around, whamming and banging, I said to myself. "If I had a gun I'd shoot him!"

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When you sit on our bed it doesn't move. It's just when he starts jerking if the pillow is between us, maybe I won't feel him slightly touching me which wakes me up. I hope it works anyway. He put up with my snoring for several years until I finally admitted I had sleep apnea and use a cpap machine now. I had driven him to the couch. Made me sad 😔 Last few years he's in our bed again. Now he's having night tremors in his sleep. So sad 😞 but I have to try something since we only have a one bedroom and I have a rod in my back so the couch is out of the picture.

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Profile picture for TSB @terrirussell

They almost always start at 37.5 which is a dose they use on children …..teens….you get enough of a reaction to know you are good but under- medicated. My script reads three a day, and the third one I rarely take. It’s there for intense days “as needed.”

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75 x 3 per day. I weigh about 155. I just helped a woman get her life back….anorexic, but she weighs only 112 and is5’10. She takes 75 x 2 per day. But honestly you will know ……he will know…….you just feel like someone took a ton of weight off your back you never realized you carried!…

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Profile picture for barbaralou @barbaralou

Thank you for your reply. I texed your reply to my husband. He doesn't know I've been on the group chat for PD.
Was your dosage lower when you first started ?

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They almost always start at 37.5 which is a dose they use on children …..teens….you get enough of a reaction to know you are good but under- medicated. My script reads three a day, and the third one I rarely take. It’s there for intense days “as needed.”

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Profile picture for barbaralou @barbaralou

I bought a body pillow but haven't received it yet. Going to put between us and see if that helps. Did ya'll stop having sex ?

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On the Parkinson's online support site I read about a man going to be diagnosed to see if he had Parkinson's. The female doctor asked him ,"if he could still get it up?" He was embarrassed and lied saying, "yes." She then said, "Then you don't have Parkinson's."
Yes, sex was out of the picture. I don't see how a body pillow will help if he is still making the bed shake with his thumps and bumps.
This sounds awful, but once when he woke me up thrashing around, whamming and banging, I said to myself. "If I had a gun I'd shoot him!"

REPLY
Profile picture for raebaby @raebaby

My husband died suddenly with Parkinson's disease almost 3 years ago. When I complained about being kicked and hit he said that he bet someone else could sleep with him. I just laughed. Even the cat would run off when he started running in his sleep.
He took high doses of melatonin that stopped the sun downing in the middle of the night, (running outside and falling face down in the dirt ) but nothing really helped him sleep.
There are few things harder than being your husband's caretaker. I still have nightmares about it.

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I'm going to add a PS. I met my husband on my 18th birthday when I arrived at college. We got married less than a year later and we were married for 58 years, most of them were happy.

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Profile picture for raebaby @raebaby

My husband died suddenly with Parkinson's disease almost 3 years ago. When I complained about being kicked and hit he said that he bet someone else could sleep with him. I just laughed. Even the cat would run off when he started running in his sleep.
He took high doses of melatonin that stopped the sun downing in the middle of the night, (running outside and falling face down in the dirt ) but nothing really helped him sleep.
There are few things harder than being your husband's caretaker. I still have nightmares about it.

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I bought a body pillow but haven't received it yet. Going to put between us and see if that helps. Did ya'll stop having sex ?

REPLY
Profile picture for TSB @terrirussell

I feel like a million bucks! And can cope with anything without “awfulizing” it…..my word….lol……used to be that I would have anxiety that should have been about a 10 on 100 scale but my brain jacked it up to 70 and made everyone around me jacked up too! I was 40 when I went on it so have been on it for 25 years. A lot of major stuff has come my way to deal with but my husband says if the house is burning, he’s running back in for my Effexor!……gamechanger of life for me!. My first husband was an alcoholic and getting out of there with two kids and through the aftermath, left me in an anxiety state I could not bluff through anymore. My mother who had these issues for different reasons, became more anal and agitated and controlling. First signs of PD…..I have been on it 25 years and am grateful every day….my kids and Step kids are just as grateful.!… I am on 75 xr twice a day . At arising, and at 3pm. It’s a gift you can give yourself , and him……God Bless!!!

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Thank you for your reply. I texed your reply to my husband. He doesn't know I've been on the group chat for PD.
Was your dosage lower when you first started ?

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Profile picture for barbaralou @barbaralou

How do you feel on the Effexor before and after you've taken it ? How long have you taken it and what strength ? My husband with PD is going for his yearly check up next month and I'm reaching out because he's making me so nervous because of this. It would be for him with his PD. Before his symptoms I was really much calmer.

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I feel like a million bucks! And can cope with anything without “awfulizing” it…..my word….lol……used to be that I would have anxiety that should have been about a 10 on 100 scale but my brain jacked it up to 70 and made everyone around me jacked up too! I was 40 when I went on it so have been on it for 25 years. A lot of major stuff has come my way to deal with but my husband says if the house is burning, he’s running back in for my Effexor!……gamechanger of life for me!. My first husband was an alcoholic and getting out of there with two kids and through the aftermath, left me in an anxiety state I could not bluff through anymore. My mother who had these issues for different reasons, became more anal and agitated and controlling. First signs of PD…..I have been on it 25 years and am grateful every day….my kids and Step kids are just as grateful.!… I am on 75 xr twice a day . At arising, and at 3pm. It’s a gift you can give yourself , and him……God Bless!!!

REPLY

My husband died suddenly with Parkinson's disease almost 3 years ago. When I complained about being kicked and hit he said that he bet someone else could sleep with him. I just laughed. Even the cat would run off when he started running in his sleep.
He took high doses of melatonin that stopped the sun downing in the middle of the night, (running outside and falling face down in the dirt ) but nothing really helped him sleep.
There are few things harder than being your husband's caretaker. I still have nightmares about it.

REPLY
Profile picture for raebaby @raebaby

REM sleep is when you go into a deep sleep, but people with the disorder don't become paralyzed while they sleep and they kick and thrash and act out their dreams. They aren't aware they do it.
I finally had to have my own room. Once when he was thrashing all over the bed while asleep I woke him up to ask what he was doing and he said he had a dream that he was running,

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I've waken him up so many times and asked him that I don't even do it anymore UNLESS he seems in distress or scared like someone is after him. Does your husband take anything to help him ? Mine takes one of those gummies each night but he still twitches. UGH ! I wish we could afford a 2 bedroom apartment. We live in a retirement community with about 100 apartments and they are real nice. Love where we live. There's activities BUT he won't participate . If he does it's a miracle. Likes to sleep a lot in his Livingroom chair. Thank you for replying. Heading off to bed now. Goodnight...

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