Antiphospholipid syndrome concerns
I am a 32 y/o female and I worked as a waitress for almost 15 years and I was studying nursing. I was having symptoms years before I was diagnosed because of my age I guess. Then I had really bad vericous veins so I had procedures done to correct them then I'd say within a year I was hospitalized with multiple pulmonary embolisms in both lungs which actually caused my right lung to suffer a severe infarction as well as numerous DVTs in my legs and a couple in my left arm.
From all of this my heart and lungs were affected, I have 2 heart valves that are regurgitating blood and COPD.
I am on numerous medications, hydroxychloroquine, Metoprolol, 2 different inhalers, duloxetine, and warfarin ofcourse.
But I am still having so many problems and it's been almost 2 years, I am constantly tired and extremely weak all of the time, my feet go numb if I stand or sit for more than 20 minutes (my toes literally turn blue to about half way up my feet), my blood pressure is low but normal from the heart meds but my heart rate is always high it's like 130 resting. I do exercises and walk with help because I've fallen 5 times now.
My body hurts constantly mainly my back and legs, they checked for lupus and RA, the RA was negative the lupus is negative but I did show positive the first time but because I was already on the blood thinners they cant get a full actual reading. It's also affecting my teeth now…
I honestly just feel like my body hates me for some reason or it thinks I'm 70 years old instead of 32.
I'm just curious if anyone else went through the the same or something similar and what they did, or if people are going through the same thing currently.
Sorry this post is long I tried summarizing it as much as I could.
Thank you for taking the time to hear me out.