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Anti-tranglutaminase-6 antibody test - Gluten Sensitivity Test

Posted by kmst1994 @kmst1994, Jan 13, 2023

Has anyone in this group had the TG6 antibody test done? I am having trouble finding a lab in the US that conducts this specific test. I have read some articles regarding the Sheffield Teaching Hospitals in the UK conducting research and finding some links between gluten sensitivity with neurological symptoms and a positive TG6 antibody test. Professor Mario Hadjivassiliou is the medical researcher associated with this research.

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carol2025 | @carol2025 | Jan 31 5:21pm

Mayo used to have the Tg6 test, but I can't find any sign of it now. 2 places in the US where you might get the test is Dr Peter Green at NY Presbyterian hospital in NYC and the Cyrex 3x array from cyrex labs. Know that you must be eating gluten for a given amount of time before the test. If you quit sometime fairly recently, it might also be valid.

REPLY
carol2025 | @carol2025 | May 18 1:31pm
In reply to @tumbleweed66 "Hey there, I completely forgot about posting here until you replied. I too am gluten free..." + (show)
@tumbleweed66

Hey there,
I completely forgot about posting here until you replied. I too am gluten free since Nov. No, I never did find a lab in the US that does the TG6 test, I don't think there are any. I connected with an ataxia clinic in the UK who tried to find a lab here that does it but they could not, and they can't work with an American or anyone outside the UK national health system. It turns out that the test is even quite specialized in the UK with only two labs that do it, both at ataxia clinics. I only wanted to take the test to find out my TG6 levels and then compare after a year GF, but it (testing) wasn't mandatory for me to change my diet. How are you doing with it? It seems everyone freaks out about how hard going gluten free is, but after a few months I think it's pretty easy. I stay away from foods advertised as Gluten Free as they tend to have other ingredients that spike blood sugar levels. I just fill my diet with foods that are naturally gluten free. It took a little getting used to but wasn't crazy hard or anything. I live in Detroit MI on the Canadian border, have lots of good friends across the river and go there often:)

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Get the Cyrex array 3 test for ttg6. Most blood labs can draw the blood and send it in on request.
In America, the only Gluten Ataxia doctor I know of is Peter Green at Columbia Presbyterian Hospital in NYC. He has others working on his team that I have heard are good, and they work with Professor Marios HHadjivassiliou at the Sheffield Clinic in Sheffield England.

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1 reply
tumbleweed66 | @tumbleweed66 | May 18 2:32pm
In reply to @carol2025 "Get the Cyrex array 3 test for ttg6. Most blood labs can draw the blood and..." + (show)
@carol2025

Get the Cyrex array 3 test for ttg6. Most blood labs can draw the blood and send it in on request.
In America, the only Gluten Ataxia doctor I know of is Peter Green at Columbia Presbyterian Hospital in NYC. He has others working on his team that I have heard are good, and they work with Professor Marios HHadjivassiliou at the Sheffield Clinic in Sheffield England.

Jump to this post

Thanks a lot! I'm going to try to contact Dr. Green's office and see if I can get in there. Pretty cool that they are working with Professor H.

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