Another frustrating appointment
I finally was able to get in to see a rheumatologist. She did a course of labs, and today called to go over the results.
She said that one of the labs she used to test for possible autoimmune conditions was showing a little low, and two others were normal. She said since she didn’t really see anything in my labs, there isn’t anything else she can do for me. She said that my body must be taking care of itself if nothing is showing in my labs.
She asked me more questions again about any rashes, which I told her I do get. I had previously told her all about my symptoms in our last appointment, but I don’t think she recorded any of it because she didn’t seem to have any familiarity with them. And even though I’ve mentioned several times that I have kept good records and photographs, she didn’t want to see them either last time or this time.
I also asked her about the possibility of Still’s Disease based on a previous recommendation, but she seemed very dismissive of the idea and just wanted to know where I had heard that suggestion. She asked about any fevers when I mentioned the Still’s Disease, but then moved on.
I told her I understood that nothing was showing in the labs, but that I was having symptoms still and I needed to know what we could do to address that issue, regardless of an official diagnosis or not. The response was “tell me what you are expecting from me and I will see if I can do it for you.” I didn’t even know how to answer that-I’m expecting help?
I finally asked about possibly doing some imaging of the joints I’ve been having chronic pain in, and she at least said sure we can do that. But it seems odd that I am the one to bring that up? She wasn’t even going to schedule any further follow up or anything with me until I asked about the imaging.
Maybe I’m just being sensitive from the constant frustration of not having answers, but I didn’t feel like that appointment went very well. Maybe you guys could give me some other perspective/opinions/suggestions?