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Angiosarcoma of the breast caused by previous breast radiation
I have recently been diagnosed with an angiosarcoma in my breast. The doctors say it was probably caused by previous radiation of that breast following a lumpectomy about 6 years ago. They tell me it is extremely rare. Has anyone had any experience with this kind of breast cancer?
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Hi @lee08, in addition to @twinsisty1 and @dawnblair33, I'd like to tag @posi9 @jbeck7406 @imjazzco @sherirp who also have angiosarcoma as a result of or after having had breast cancer.
What is your current treatment plan?
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2 ReactionsI am going to have 12 weekly treatments of chemo, in addition to radiation for the last 6 of those weeks (ironic, I know, since radiation caused this) to shrink the tumor, and then a mastectomy. 🙏🏻
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1 Reaction<p>Just had left mastectomy due to secondary angiosarcoma after lumpectomy and radiation treatments 3+ years ago.<br />Looking for current information on follow up treatment.</p>
Hi @bardona, welcome. I wonder if either of these existing discussions are relevant to your situation?
- Is anybody dealing with an angiosarcoma?
https://connect.mayoclinic.org/discussion/angiosarcoma/
- Angiosarcoma of the breast caused by previous breast radiation
https://connect.mayoclinic.org/discussion/angiosarcoma-of-the-breast-caused-by-previous-breast-radiation/
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5 ReactionsI am encouraged by your text. I just had a mastectomy this month of my left breast for angiosarcoma. It was caused by the radiation treatment I had after a Lumpectomy for lobular breast cancer 3 and a half years ago. The current plan is observation along with scans and blood tests. I was hoping for this kind of follow-up rather then chemo or more radiation.
Prayers you will remain cancer free.
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2 ReactionsYes. Thank you Colleen.
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2 Reactionsthis is Mulkey 518 - yes I would love to join this group - what do I need to do.
thank you
I had angiosarcoma in my upper right side chest-- but NOT breast!
Many years ago I had Melanoma in my right arm. No radiation, just extensive surgery.
My right arm has always been somewhat swollen, besides having a bad scar, I've always wondered if the melanoma was connected with the angiosarcoma. Never got a clear answer from any doctor!
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1 ReactionHi @mulkey518, simply by posting to this discussion, you are part of the group. 🙂
What treatment are you or did you have for angiosarcoma? How are you doing?