Amyloidosis Anyone else diagnosed with this disease?
Hello my name is Ronda. I was just diagnosed with cardiac amyloid and have just had a bone marrow biopsy for multiple myloema. Still waiting for test results, but we are in the holidays so probably taking longer. Anyone here diagnosed with amyloid?
Meant to say my diagnosis was from the MRI I had and pet scan. I have had two stomach biopsies and just recently a bone marrow biopsy for multiple myloema and to find out what type of amyloid I have. I am in terrible nerve pain but have been for years in my leags but not in my hands and feet untill I had a stroke after my third open heart surgery to fix my heart valves. Now my hands, left foot and left side of body feels like it is on fire and in pain most of the time. I am terrified and hope to find some kind of comfort from someone going through similar.
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