1. < Blood Cancers & Disorders

Does anyone else have AML with ddx41 genetic mutation?

Posted by fortuitous @fortuitous, Mar 8 4:06pm

I Was diagnosed with aml or acute myeloid leukemia about 14 months ago.They (doctors) were preparing me for a stem cell transplant .But after a genetic test it was put off because I have the ddx41 mutation.I would like to talk with others with the same condition.Right now I'm taking venclexta and decitabine and am doing pretty well..

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dmc1937 | @dmc1937 | Mar 8 8:54pm

I have AML with NPM1 mutation, not familiar with yours. I initially took Inqovi with 15 months remission. I'm currently taking venclexta and decitibine, 5 days out of 10 so far with no definitive side effects.

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