1. < Head & Neck Cancer

Diagnosed with Ameloblastoma

Posted by caw @caw, Nov 9, 2021

Reaching out to anyone else wanting to connect with others diagnosed with Ameloblastoma and the journey involved.

My background, diagnosed February 2021, segmental mandibulectomy, fibula free flap March 2021.

Interested in more discussions like this? Go to the Head & Neck Cancer Support Group.

Mentor
William Olsen, Volunteer Mentor | @hrhwilliam | May 16 12:07pm
In reply to @anbar04 "Hey, keeping on keeping on sounds good and the results for you also sounds good I’m..." + (show)
@anbar04

Hey, keeping on keeping on sounds good and the results for you also sounds good I’m so happy for you. For me I feel pretty good too the swelling has mostly gone and my energy levels have gone up since I joined the gym. I’m just preparing for university in 4 months! My consultant found that everything looks good I just am still struggling with some foods but I’m sure that’ll come in time especially since I only have a plate. How is everyone else?

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It's always good to hear from you and am glad you are on the mend. Because you fought this battle with such courage, never giving up, university should be a breeze. Good on you as you will always be stronger than those around you. Time should heal all.

REPLY
Tom Schwerdt | @tomschwerdt | May 16 3:01pm
In reply to @anbar04 "Hey, keeping on keeping on sounds good and the results for you also sounds good I’m..." + (show)
@anbar04

Hey, keeping on keeping on sounds good and the results for you also sounds good I’m so happy for you. For me I feel pretty good too the swelling has mostly gone and my energy levels have gone up since I joined the gym. I’m just preparing for university in 4 months! My consultant found that everything looks good I just am still struggling with some foods but I’m sure that’ll come in time especially since I only have a plate. How is everyone else?

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@anbar04 Thank you so much for your well wishes! I'm glad you can get on with your life and head off to University!

If you don't mind sharing, whereabouts are you headed to University? I went to University of Delaware.

Are there some more treatments planned, or is it just recovery and physical therapy type stuff for you? That rejection had to be really rough for you. I can't even imagine.

I don't think I mentioned it here, but apparently I started grinding my teeth hard due to the stress during the timeframe between when the dentist found the recurrence, the months for confirmation and the months for getting referred to MD Anderson and starting actual treatment.

Due to the grinding, I cracked three teeth, scattered around - both sides upper plus lower left (above the tumors). Had my first crown on a natural tooth earlier this week - temporary, of course while the permanent one is being made. Not fun, but a lot better than jaw surgery! They'll start on the upper left when I go back for the permanent on upper right in a couple of weeks. Not going to do the lower left until I have more confidence I'll actually keep the tooth - and it's also the only one which doesn't bug me at all.

I've been using a night guard since the cracked teeth were found.

REPLY
1 reply
anbar04 | @anbar04 | May 16 4:51pm
In reply to @tomschwerdt "@anbar04 Thank you so much for your well wishes! I'm glad you can get on with..." + (show)
@tomschwerdt

@anbar04 Thank you so much for your well wishes! I'm glad you can get on with your life and head off to University!

If you don't mind sharing, whereabouts are you headed to University? I went to University of Delaware.

Are there some more treatments planned, or is it just recovery and physical therapy type stuff for you? That rejection had to be really rough for you. I can't even imagine.

I don't think I mentioned it here, but apparently I started grinding my teeth hard due to the stress during the timeframe between when the dentist found the recurrence, the months for confirmation and the months for getting referred to MD Anderson and starting actual treatment.

Due to the grinding, I cracked three teeth, scattered around - both sides upper plus lower left (above the tumors). Had my first crown on a natural tooth earlier this week - temporary, of course while the permanent one is being made. Not fun, but a lot better than jaw surgery! They'll start on the upper left when I go back for the permanent on upper right in a couple of weeks. Not going to do the lower left until I have more confidence I'll actually keep the tooth - and it's also the only one which doesn't bug me at all.

I've been using a night guard since the cracked teeth were found.

Jump to this post

Thank you! My treatment plan is currently checking on the jaw every few months to ensure the plate doesn’t move as if it moves we have to start all over again which is the worst possible outcome so we keep scanning and praying for positivity! As I live in London I’ll be going to a university called Brunel it’s only 30 minutes from me so it’s not to bad hopefully I can pursue my law degree with the best health!

Honestly teeth grinding is more common than I thought and it may be unpleasant but at least the treatment is a breeze compared to what you’ve been through! We’ve all got this that’s the one thing I know!

REPLY
Tom Schwerdt | @tomschwerdt | May 18 5:08pm

Okay, now I get to picture @anbar04 as a barrister wearing a powdered horsehair wig to address the Court... 😀

I hope you don't mind me being a bit silly there...

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