Am I disabled? Now what.
There are two significant questions I think we all have to contend with. Am I truly disabled? If I am, then how do I live my best life despite my disability? For me, I might be going along well, and I think I can tackle the world, and then BAM, I'll have a terrible seizure. Yesterday, I was writing a scientific article about how climate (humidity, temperature, and seasonality) can impact the onset of seizures. I barely completed my article, and then BAM, I was seizing and badly hurt my arm. There are times I don't feel disabled, and then I'm reminded that I am disabled. Additionally, since I am unable to drive, I believe this is a clear indication of my limitation. Can you relate to this? Do you face those same questions? How do you manage it?
Interested in more discussions like this? Go to the Epilepsy & Seizures Support Group.
@dannoyes I can relate. I went many years seizure free, only to suffer I seizure at work that nearly permanently took me out. This is now 5 years ago. I filed for disability, and got it, because, there was no was I could safely get to work, yet alone stop having seizures. I decided that until I could get them under control for about 2 years, then I would try and go back to work. That is my goal. However, according to what they consider a disability, seizures are considered a disability, and I know for some people it is hard to consider themself in that category, its like we are put in this category that we dont necessarily want to define us, but, I look at it like, if I have to give myself the space and time to get to a better place, out of safety, respect for my body, I will do that. We as seizure patients endure alot, mental, physical, emotional, spiritual and I think the best thing for us is to cut ourselves some slack, to not be critical of oneself. Sometimes it is hard enough to function without having the pressures of all the other things that happen in life and we put upon ourselves. Sometimes we are our own most critical source. I find this to be very negative to the spirit. I think if we take day by day, and look at the things that we are doing, and moving towards rather than looking at the things we’re not doing. With health, hope, happiness, I pray we will all be there one day. I never give up in that fact.
This is profound and much appreciated. Today was one of those days when it got especially hard. A quick nap and I was back to the land of the living. Thank you sooooo much for sharing!