1. < MAC & Bronchiectasis

Alternative (herb) medications

Posted by charlie999 @charlie999, Jan 11, 2018

Anyone here tried alternative medications for mac? I was on the big three for a short time, but it was wrecking my body. liver still abnormal. I got off and not going back. Maybe try herbal solutions. I rarely ever cough and have no other symptoms. Doc says =according to my ct scans, I have mac=. Appreciate any herbal info/advice. Thanks. Charley

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Moderator
Colleen Young, Connect Director | @colleenyoung | Jan 11, 2018

Hi Charley,
There have been a number of complementary therapies mentioned in the main MAC discussion thread. Thanks for pulling this out into its own topic.
@ling123 and @dcoburn posted about vest and oscillation therapy. @nick52 has also mentioned several complementary options.

Complementary therapies are usually therapies used in addition to conventional care. Alternative therapies are defined as those use to replace conventional care. Sometimes people use these terms interchangeably. https://nccih.nih.gov/health/integrative-health#cvsa It is always a good idea to talk to your doctor about complementary or alternative therapies you're considering, and to do your research about their effectiveness.

I really appreciate the advice that fellow Connect member Quazar offers in this discussion:
- How to Avoid Quacks and Snake Oil Treatments https://connect.mayoclinic.org/discussion/how-to-avoid-quacks-and-snake-oil-treatments

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Jan 13, 2018

@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to not go the route of the three strong antibiotic regimen due to worrieksonvile. s of harming my liver. I have been on an ongoing treatment over the last 5 yrs of using one a month. I take the antibiotic for 10 days each month and the antibiotics are alternated each month as to not build up a resistance to them. The two antibiotics used were doxycycline and ciprofloxacin. I did those two for three yrs. until I caught a. psudomonas. Then, the doxycycline was swithed to tobramycin. So far so good. I have not coughed in years, whereas, I used to cough non-stop and violently. The doctor that put me on this regimen is at the Mayo Clinic in JAX.

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31 replies
Mentor
Terri Martin, Volunteer Mentor | @windwalker | Jan 13, 2018

@charlie999, I know that my previous reply didn't answer your question about alternative or natural treatment for mac. My reply was rather about an alternative way to treat mac with antibiotics that is less harmful to the liver. If you are really interested in a more natural approach for treatment, then I would recommend seeking help at the University Of Arizona Medical school. They have a wonderful integrative medicine division there.

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2 replies
nick52 | @nick52 | Jan 13, 2018

@Boomexpert,
I think you live near Clearwater? Am I right?

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charlie999 | @charlie999 | Jan 15, 2018
In reply to @windwalker "@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to..." + (show)
@windwalker

@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to not go the route of the three strong antibiotic regimen due to worrieksonvile. s of harming my liver. I have been on an ongoing treatment over the last 5 yrs of using one a month. I take the antibiotic for 10 days each month and the antibiotics are alternated each month as to not build up a resistance to them. The two antibiotics used were doxycycline and ciprofloxacin. I did those two for three yrs. until I caught a. psudomonas. Then, the doxycycline was swithed to tobramycin. So far so good. I have not coughed in years, whereas, I used to cough non-stop and violently. The doctor that put me on this regimen is at the Mayo Clinic in JAX.

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Thanks much Windwalker. I will sure contact univ of Arizona. Trying to stay with natural meds if possible. Hope yours goes good.
Blessings
Charley

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1 reply
charlie999 | @charlie999 | Jan 15, 2018

Kissimmee near Orlando.

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nick52 | @nick52 | Jan 15, 2018
In reply to @windwalker "@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to..." + (show)
@windwalker

@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to not go the route of the three strong antibiotic regimen due to worrieksonvile. s of harming my liver. I have been on an ongoing treatment over the last 5 yrs of using one a month. I take the antibiotic for 10 days each month and the antibiotics are alternated each month as to not build up a resistance to them. The two antibiotics used were doxycycline and ciprofloxacin. I did those two for three yrs. until I caught a. psudomonas. Then, the doxycycline was swithed to tobramycin. So far so good. I have not coughed in years, whereas, I used to cough non-stop and violently. The doctor that put me on this regimen is at the Mayo Clinic in JAX.

Jump to this post

 @charlie999 glad to know that  you a treating yourself with Natural meds.  That is all I have used since 2010.  I am doing really well.  It is like medication trial and error but much less dangerous the natural then the chimical for our health.

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charlie999 | @charlie999 | Jan 15, 2018
In reply to @windwalker "@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to..." + (show)
@windwalker

@charlie999 , Hello Charlie. I was diagnosed in 2005 with MAC and bronchiectasis. I opted to not go the route of the three strong antibiotic regimen due to worrieksonvile. s of harming my liver. I have been on an ongoing treatment over the last 5 yrs of using one a month. I take the antibiotic for 10 days each month and the antibiotics are alternated each month as to not build up a resistance to them. The two antibiotics used were doxycycline and ciprofloxacin. I did those two for three yrs. until I caught a. psudomonas. Then, the doxycycline was swithed to tobramycin. So far so good. I have not coughed in years, whereas, I used to cough non-stop and violently. The doctor that put me on this regimen is at the Mayo Clinic in JAX.

Jump to this post

Thanks, Nick. I am trying to put together a successful natural regimen. If you could outline your treatment procedure, I would really appreciate it. Can’t seem to find much info, so I am mostly in the blind right now. Super good to know that someone has a handle on this. May God guide you with His most abundant blessings. Thank you for any help. Charley

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susiecax | @susiecax | Jan 30, 2018

Has anyone tried taking Silver

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6 replies
susiecax | @susiecax | Jan 30, 2018

Can someone list their alternative treatments
Thank u

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5 replies
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