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Long Covid Syndrome

Posted by jvrm1965 @jvrm1965, May 2 5:15pm

I had COVID for the first time a year and a half ago since then. I am coughing non-stop with lots of mucous. I have shortness a breath. I cough so hard that my body hurts and I throw up. I can't focus on work, I'm a nurse so that's dangerous, and my Doctor seems to give me the same medicine that does absolutely nothing on top of which I also lost my voice because I coughed so much and so hard y voice is just a whisper, depression is real.

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hopegeo | @hopegeo | May 7 4:24pm
In reply to @spittendrigh "For complex reasons I cannot entirely remember I took Prednasone for a week, at the end..." + (show)
@spittendrigh

For complex reasons I cannot entirely remember I took Prednasone for a week, at the end of year one. I felt instantly cured. Prednasone is dangerous in the long term use context, so I stopped. And then Long Covid returned. I was still too fuzzy-brained to figure it out then.

Now it increasingly tempting , to conclude LC is an auto-immune inflammation, taking many largely predictable forms: tinnitus, foggy brain, rashes, lethargy, colitis and fatigue, in repeating combinations.

I will now try to find out more about non-steroidal and low-steroidal anti-inflammation, including but not limited to diet.

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I have had ulcerative colitis for > 50 years. It is an auto immune disease. I am 78. Since COVID, I have found And lost other auto-immune diseases: rashes, itching, bronchiectasis,
recurrence of acute ulcerative colitis after years of remission, loss of control of Thyroid
disease. Absolutely find an excellent Pulmonologist. That has helped me. As far as the myriad of Long Covid sequella, you need to address them as they occur. COVID definitely attacks our
immune system in a horrible way that other infections appear not to. Keep on trying and get your health team to talk to each other. When friends And family encourage exercise, I say,
"Why don't you go for a run And let me know how it goes." Some days the laundry is my aerobic
work out. It's hard to not give in to despair and guilt over your inability to function as you once did. I wish you well on your new journey to better health

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tenclawz | @tenclawz | May 8 8:57am
In reply to @spittendrigh "I did see Pulmonologist. He sent me packing, with a pat on my back. Everybody is..." + (show)
@spittendrigh

I did see Pulmonologist. He sent me packing, with a pat on my back. Everybody is about different.

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I understand that there are many Doctors that will send the patient packing. Absolutey horrible, BUT, I also think from what I have read in the past that the Hospitals have too much control over the Doctors. They want the Doctors to rush through and grab another patient. As I said once before, (money talks, anything else walks). Just my 2 1/2 cents.
I have been putting up with it (cough,fleme) but now have to see if Doc pats me on the back. It is rough.

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dh524 | @dh524 | May 8 8:45pm

I am sorry you are going thru this. I also had covid a year ago and also rebound...it took a long time for me to test negative. Here it is a year later and my cognitive function is still not back...cannot focus and when I read something I cannot remember it....It sounds like you are still suffering with this too. I am not sure what we can do about it. Doctors can be so marginalizing....I am tired of it.

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cleopepper | @cleopepper | May 9 4:52am
In reply to @covidstinks2023 "Dear Nurse JVrm1965, I am so sorry. Long COVID is so hard on the body. It..." + (show)
@covidstinks2023

Dear Nurse JVrm1965, I am so sorry. Long COVID is so hard on the body. It seems everyone is so different. I have so many lingering issues from it (too many to mention), but, yours are harder than mine.

Just some thoughts; Vicks vapor rub on the soles of your feet at night and then put socks on has helped some folks with coughing. Also, the old lemon drops you use to buy at the General Store (Amazon has these). Lemon thins mucus as well.

Has your doctor put you on NAC (Pure Encapsulations on Amazon) or Guaifenesin? They both help thin out mucus. NAC can be very drying, but, it helps greatly. Also, drinking lots of water, a cool mist humidifier helped and lemon ginger tea.

I wonder if you have a lingering infection in your sinus or chest which can cause more mucus? The antibiotic that knocked the infections out for me was Levaquin. It cured the sinus infection, bronchitis & pneumonia that I had with COVID along with a steroid taper. Ask your doctor what he thinks about it. I was left with a lot of mucus afterwards in the back of my throat.....I still have that after almost 2 years post COVID. I gargle with warm salt water to help with that and use Listerine. I have to scrape my tongue every morning.

My immune system was already compromised before COVID, but, it is much worse since I had COVID.
I believe our immune system goes into overdrive to attack COVID and it just doesn't calm down for a while.

I am praying for you. Keep me posted. I care. Hugs & prayers....

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A friend of mine who is a professional singer advises to use sugar-free lemon drops.

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