Allergic to Most Foods After Two Anaphylactic Reactions: Non-Allergy

Posted by seemarie @seemarie, Oct 27 11:11am

Looking for some support, or anyone that has had similar experiences: I have mild pulmonary sarcoidosis, and hasimotos thyroiditis, my thyroid is underactive.

I had covid in Mid September- 15-21ish, then began to develop what I thought was allergic reactions to food. And had three major reactions, with two requiring epi and hospital visits. After the third incident, it seems my body reacts to everything I eat, foods I have had no issues with before triggers flushing, itchy face and digestive problems. Not always as intense as the first threereactions but that's because I am sticking to my safe foods, and eating new (really old foods) in a smaller portion to see my reaction. Generally if i take bendryl after a while the allergic reaction subsides but I am drained from it. I have visited an Allergist and Immunologist, where he conducted allergy testing and he did not seem convinced that food was the culprit, put me on a anti-histamine and pepcid, however, I dont see him again until Nov. My Primary thinks this is my immune system in a storm or out of whack. Does this happen when it is? Does it attack food as if it's toxic to the body?

Safe foods generally are chicken, yogurt, milk, oatmeal, broccoli and carrots, 100 percent whole wheat protein mix (which I can make pancakes etc) and more recently Beet/Cabbage/Carrot soup broth.
Was told to stay awy from Soy, Rice, Peas(Legumes in General) and All Corn products.

Any support around similar experiences and/ or things you did to cope.
Thank You 🙂

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Wow you can eat way more foods than I can .
I’m 10 th year into 7 chronic digestive disorders .
So many tests , have seen 5 Gastro Dr’s in 2 states even Mayo Jax .
I have gastritis, Gerd, small, , hiatal hernia, IBS, small benign polyps on my stomach lining, diverticulosis all over my colon, nausea, chronic fatigue, insomnia, esophagitis.
And the last eight months, I could barely eat anything I get so sick all the time and I’ve lived off Pepto-Bismol for the last 10 years.
It’s getting worse and worse . I throw up more now too .
I’ve tried every single thing .!!!

I even did the holistic route . Functional medicine route , elimination diets ( now I barely eat and still I blow up and churn and deep wet belch over 1000 x a day / night ). I take anti anxiety med for 7 years and Ambien to help sleep it doesn’t help much anymore.
I starve all day , but suffer without food too .
I have no desire except my stomach wants food .
I have no real life outside the home 🏠 now .
My husband of 21 years works 3 at work and 2 remote . So I’m alone w/ my 2 dogs all day 3 x a week .
We can’t do anything ( never eat out , only really eat small healthy dinner at home ). He takes me to Dr. appts or dentist or for any bloodwork appointments. That’s it .
I just turned 63 ( but look 56 but feel 90 .
So this actually started at 52 .
I’ve just gotten worse and worse every year .
Tried every supplement they make for gastric health . Allergy tested like you ( said no food allergies ). I’m constantly scanning health help sights and groups.
I have to wear ear plug because my gut noises wake me up . I don’t sleep well at all .
I have Gastro Cardiac syndrome too which makes my PVC’s flare up bad a lot .
I hope you find your answers .!!!

It’s so depressing to live this way and no Dr. can help .

I’m having my first grandchild a girl in Jan ( my daughter and husband that live 2 hrs away ).💕
Her baby shower is Sat and I’m scared to death to go down there ( because I’m so sick 🤢 daily ). I never get a day off .

My Son & wife live very close to them ( all in FL ) .
I talk to a therapist most recently but honestly she’s nice but it doesn’t help my physical health conditions .
I’m at wits end .

REPLY

Hi,
I experience similar problems and also building intolerances to medication. I have IBS, SIBO and Autonomic polyneuropathy (ANS) among my list of health issues. My problems seems to track back to ANS and the digestive system which is now under the spell of ANS, totally. I usually live on bread and water for the most part as these items I tolerate reasonably well. I have to limit the amount of food or fluid I can injest per day to alleviate the symptoms. Most medication now has to be injected for it to be tolerable.
The Autonomic nerve is the connection for the muscles to and from the brain, any corrupted signal and silly things happen until a good signal is emmitted. This controls all the things we do without thought like organs and muscles, Poly being both Autonomic and Peripheril nerves, the 2 main controllers of the body. My digestive system is compromised from top to bottom and very much out of my control as is my BP.
I now get temporary swollen throat, occasional anaphylactic shock , paralysis from the waist down, AF of the heart, brain fade and other symptoms. Fourtunately all but the digestion system and vertigo are random short lived hits I have come to live with.
I'm under a gastro specialist and like me he thinks if I can tolerate it consume it, the likes of Fodmap have been thrown out years ago. Basically suck it and see is my method, otherwise stick to my restricted food list and have very little fun with food.
Cheers.

REPLY
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