AL amyloidosis

Posted by devineone @devineone, Aug 22, 2018

My husband is an ESRD patient for 3 years on hemodialysis recently he was diagnosed with AL Amyloidis he is getting the chemo treatment recommed on his 3rd week. Unfortunately his his dialysis sessions have been very rough as his blood pressure drops as they try to remove more fluid. This is what led to the diagnosis of AlAmy in the first place. Docs don’t seem to have many cases of ESRD and ALAmy so I am wondering if any one has any info Thank you


I would like to invite @oldkarl back to this discussion as he has amyloidosis and has a ton of experience and knowledge to share and may have some insight on ESRD and amyloidosis.

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Yes that would be fine. Thank you

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