AIHA Hemolytic Autoimmune Anemia and Covid-19 Vaccine reactions

Posted by gailiebird @gailiebird, Feb 11, 2021

Has anyone with AIHA received the COVID vaccine? Reactions?

Interested in more discussions like this? Go to the Autoimmune Diseases Support Group.

@johnbishop

Hi @lee7766, Welcome. There is another active discussion you might want to join to share your experiences with Autoimmune Hemolytic Anemia -- CLL complicated by autoimmune hemolytic anemia (AIHA): https://connect.mayoclinic.org/discussion/cll-complicated-by-aiha/

Did your doctor advise you not to get the vaccine?

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No. I decided not to get it on my own. I also have APS, which causes my blood to clot abnormally.

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Thanks for your discussion about immune diseases and the COVID shot. I have an extremely rare Immune disease that currently has NO CURE ... with drugs you can stay in remission. It is MYASTHENIA GRAVIS - OCULAR and GENERALIZED. I asked doctors before I got the two Moderna shots in April and May 2021. They told me that Moderna Covid shot was safe ... as it was a DEAD VIRUS SHOT ... so I was safe .... as my immune system is TOAST ... with over 2000 mg of CELLCEPT drugs daily. (I can not risk getting any infections ... already had November 2020 in hospital with SEPTIC BURSITIS of left arm)

They said to avoid SHINGLES and other similar shots as they use live viruses. The doctor was less certain if MODERNA shots would keep me safe from the COVID. I did not have a bad reaction to the two shots .... but he did not know for certain if they would work on me either to protect me. But so far ... I have not had a MYASTHENIA GRAVIS CRISIS or been to the hospital in 2021.

The doctors in my area were totally CLUELESS and never could diagnose my MYASTHENIA GRAVIS for eight long, suffering months .... and three of them were HOSPITAL NEUROLOGISTS. I was diagnosed by an intelligent floor nurse at the second hospital .... who recognized my MG symptoms ... as she had other patients at her hospital that had the 8 or 9 symptoms of MYASTHENIA GRAVIS ... like I did and all the doctors ignored my troubles and guessed wrong ....... NO ONE can have all your symptoms and only one disease.

I was weaned off HIGH DOSES of PREDNISONE for my Myasthenia Gravis and Acute Respiratory Failure on November 27th of 2020. It was nasty. It... also with prescribed STATIN drugs .... gave me MEDICALLY INDUCED DIABETES II ... and I never had diabetes ever in all my years. My blood meter scores with PREDNISONE and STATINS were 350, 400, and off my meter HIGH. My doctor finally tapered me off and killed the INSULIN LANTUS shots a month ago .... that the hospitals forced me to take for the last 18 months. Also PREDNISONE gave me weight gain and aggravated ONSET INSOMNIA that Myasthenia Gravis gave me and still prevents me from falling asleep in a timely manner ..like everyone else. I have been off PREDNISONE for a year now .... and my blood meter numbers dumped to 110 and under ... once PREDNISONE cleared out of my body .... but they still will not kill off my Rosuvastatin. that replaced Atorvastatin.

Editor's Note:
CORRECTION: A new shingles vaccine (Shingrix) was approved by the U.S. Food and Drug Administration in 2017. This new vaccine is inactivated, meaning it uses a dead version of the virus, eliminating the risk of transmission. (The previous, older shingles vaccine (Zostavax) was a live-attenuated vaccine, meaning it uses a weakened form of the live virus.)

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