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Has anyone with AIHA received the COVID vaccine? Reactions?
Has anyone with AIHA received the COVID vaccine? Any autoimmune issues?
Hello @gailiebird and welcome to Mayo Clinic Connect, where members get and give support. I can see that you are interested in connecting with members who may be able to share information on the COVID vaccine and potential reactions due to AIHA. Members such as @gg17 and @whoey have both mentioned associations with AHIA and might be able to share more with you depending if they've received the vaccine.
Are you scheduled to receive the vaccine?
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I'm on covid-19 vaccine waiting list and expect to be scheduled soon. After catching a cold a couple of winters ago my hemoglobin dropped and I required Rituxan transfusions to get it under control. I'm currently able to control AIHA with steroids but concerned how the vaccine may cause my autoimmune system to go in overdrive.
Hi! My rheumatologist said that I will have a huge flare up that will make me feel like I need to go to the ER but “ I must remember that it’s a reaction from the vaccination and the flare will be severe but just remember that you’ll live” wonderful advice! Lol!! But that is what I’m told. I’m on the waitlist…..still.. I have RA, Sjögren syndrome and HEP C ( unaware of how/where that came from. So, as for your question: except pain, inflammation etc. at its worst for 1-2 weeks. ( I can’t wait!!)
@gailiebird I understand your being anxious about your disease and the vaccine. I was nervous, too, but my oncologist and neurologist were thrilled that I had it. No reactions, thank heavens! But, I know we’re all different.
Have you talked with any of your doctors about the vaccine?
Hi! I got diagnosed with AIHA when I was 13 and i’m currently 18. I haven’t been on any medication for about 2 years after I got a treatment that worked really well. I recently got my 2nd vaccine shot about a week or 2 ago. I haven’t really thought much into how I was feeling from the shot because I just figured I would feel fine but for the first time in years i’m experiencing my symptoms again. I’m hoping it’s just a mini flare up i’ve been feeling like this for a little under a week but just now started thinking it was related to my AIHA since I haven’t thought about it in so long. I’m going to call and make an appointment to check tomorrow.
@brynnolivia I think that they should have warned about autoimmune conditions. In my case, dose 2 of vax brought on a bad case of (autoimmune) colitis, not gone away after 6 weeks. I regret having it. I was fine, even walking around NYC without a mask.
Which vaccine did you get? I was fine too before getting it I live in a very small town in a state that was one of the last to start getting covid. I agree they should have warned people because It didn’t even cross my mind at first.
@brynnolivia I got Pfizer 2. As I said, this turned out to be a big mistake. I even asked my doc and he gave me a quick answer: get the vaccine. I hope it works out for you.
Hello @bvgims and welcome to Mayo Clinic Connect. Good idea to get an appointment and get things checked.
Depending on your outcome, you may wish to report your symptoms to VAERS. https://vaers.hhs.gov/
Will you come back and share what you learn?
Hi. I hope you are feeling better now. My daughter was diagnosed with AIHA when she was 10. She is now 18, and is still on medication to treat the AIHA. If you are comfortable, can you share with me the treatment that worked well for you and allowed you to stop medication. My daughter had the Pfizer vaccine, and it did not seem to adversely affect her AIHA.
I had rituximab transfusions!!
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