Has anyone with AIHA received the COVID vaccine? Reactions?
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I received my vaccine in March of this year and within several months, I became to feel extremely exhausted all the time. I was recently diagnosed with anemia and we have not been able to determine why I am anemic and what is the underlying cause. It took me a few to figure out what the one major change was in the last couple of months, which was the vaccine. I have had 2 iron transfusions and neither has worked. I am chronically exhausted, my hair is falling out, my eyes are constantly glazed over and red. I have brain fog and when I can fall asleep, I sleep hours and hours on end.
I was researching what could be a cause of this and came across the article on AIHA Hemolytic Autoimmune Anemia and Covid-19 Vaccine reactions. I have struggled with my doctors to find a reason and I honestly think this could be the cause. What do I need to do to determine this? I have never felt this way before and this is every day now that I feel like the walking dead. Any help would be appreciated!!!
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Hello @catparker5, Welcome to Connect. So sorry to hear you had the bad reaction to the vaccine. It does seem a little strange that the reaction didn't occur until several months after the vaccine. Here's some information I found that discusses the topic:
A Case of Autoimmune Hemolytic Anemia Following COVID-19 Messenger Ribonucleic Acid Vaccination: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8200779/
Did you report the side effects to the Vaccine Adverse Event Reporting System (VAERS): https://vaers.hhs.gov/?
I have Autoimmune Hemolytic Anemia. Did not get the vaccine for this reason.
Hi @lee7766, Welcome. There is another active discussion you might want to join to share your experiences with Autoimmune Hemolytic Anemia -- CLL complicated by autoimmune hemolytic anemia (AIHA): https://connect.mayoclinic.org/discussion/cll-complicated-by-aiha/
Did your doctor advise you not to get the vaccine?
I made the decision not to receive the COVID vaccine after reading that anymore with autoimmune or lung issues should not get the vaccine. FREE mRNA can signal danger to your immune system and drive inflammatory diseases. The mRNA is new technology, and they do not know what the short term or long term effects will be. Everyone has to decide for themselves what they think is best for them, and I have decided that the risks far outweighs the benefits of the vaccine for me. Kathryn
I wish I would have known about it before the vaccine. I could have made a better decision honestly. Now I have to figure out what to do now.
Thanks for the reply. I would say it mostly occurred within a month. I had some other medical issues going on during that time and was not getting any sleep so may have thought that was the issue, but its not. I have not reported anything, I just started doing research when my Dr could not figure out anything and just found articles on this and the connect page. I sure will report it. Any suggestions on where to start medical wise for treatment? I am at a loss on what to do.
I received the second dose of the vaccine the end of Feb. In early summer my mouth suddenly went completely dry and my knees and hands started hurting. I was recently diagnosed with RA. I know it was several months after the vaccine but I just wonder if I had some joint pain but just blamed it on old age. I have been wondering if the vaccine had anything to do with it. The RA doctors group they referred me to has yet to contact me after 3 weeks.
@catparker5 - Where to start medical wise is a good question. If it were an option and it was me, I think I woud seek help at a major teaching hospital or health facility like Mayo Clinic that uses a multidisplinary teamwork approach to healthcare and is patient centered. I would try and see if my doctor could provide a referral to a hematologist as a start. Do you have a major health facility close to you?
Hello @seneca, Welcome. I know it's no fun waiting in pain for 3 weeks with no followup. Have you tried calling the RA doctors they referred you to? Is there a possibility you can get an appointment with a different rheumatologist?
I have had 2 neurological illness in my life. Meningitis when 11 and Guillian-barre at 50. I'm not afraid reoccurring of either of those per statistics, I'm afraid of what else can happen so I live, if you want to call it that, in total isolation. I hope you find help.
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