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Aggressive Bladder Cancer: Tips to help hold meds in bladder?

Posted by jimg56 @jimg56, Jan 26 6:45am

My husband is on his third Infusion treatment with gemcitibine . So far no real side effects or problems. The only thing he is having a rough time with is holding the drug in his bladder for the hour. We have to stay there as they have to leave cathedar in so meds stay in his bladder. Some people can get the infusion and leave but he cant hold it in so we stay.
It is uncomfortable in waves for him. It comes and goes.
We get through it as I sit with him and watch tv in his private little space @ the hospital.

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jimg56 | @jimg56 | Mar 6 5:02pm

Heard a scientist say
When they take a biopsy of a tumor they are breaking it apart causing it to spread. Instead of taking a biopsy just have the entire tumor taken out.
Then test it. Seems to make sense to me.

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jimg56 | @jimg56 | Mar 9 8:21am
In reply to @delavan "Thanks. Let us know what the response is. To all who are going through this, including..." + (show)
Profile picture for delavan @delavan

Thanks. Let us know what the response is. To all who are going through this, including family members, you are in my daily prayers. I think this is more difficult for my wife than it is for me.

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Finished with infusions. He missed 2 but dr did not add the missed ones to the schedule. Now we wait till 4/14 for cystoscopy and hope the infusions work.

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delavan | @delavan | Mar 9 9:56am

I wish you and your husband the very best. This disease has a lot of vicissitudes. Never lose hope.

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jimg56 | @jimg56 | Mar 9 11:22am
In reply to @delavan "I wish you and your husband the very best. This disease has a lot of vicissitudes...." + (show)
Profile picture for delavan @delavan

I wish you and your husband the very best. This disease has a lot of vicissitudes. Never lose hope.

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Thank you so much. Best of luck to you as well.
Never give up and stay positive! 🤗

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jimg56 | @jimg56 | Apr 15 9:12am

So my husband had his cystoscopy yesterday
After all his treatments with gemcitibine.
There is a 1 cm tumor so he is having his 2nd Turbt in may. Very disappointed. .

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annepark | @annepark | Apr 16 9:18am
In reply to @jimg56 "Heard a scientist say When they take a biopsy of a tumor they are breaking it..." + (show)
Profile picture for jimg56 @jimg56

Heard a scientist say
When they take a biopsy of a tumor they are breaking it apart causing it to spread. Instead of taking a biopsy just have the entire tumor taken out.
Then test it. Seems to make sense to me.

Jump to this post

That makes sense to me.

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