Agent Orange and Neurological Disorders

I just read a post from a veteran who discussed the effects of Agent Orange and Parkinson’s Disease. It made me wonder if there are others who have had similar experiences? If so, is there anything you have learned from your medical team and/or the VA regarding this? Please feel free to share your story.

@colleenyoung

Good questions Teresa with respect to Agent Orange and neurological disorders. I’d like to bring @mivy @johnjames @ggopher @macbeth @retairforceman and @Robert43DAP into this conversation as they have experiences to share.

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I believe there is allot of information the VA puts out that isn’t the whole truth and that there is much more to all the chemicals they tell us about- when I was in Viet Nam twice, I saw agent Purple- along with my whole company , also agent white- we never hear about them and what types of damage they do to us- I’m sure they do something. about 5 years ago a Master SGT. with the Army Corp of Engineers found in South Korea( our friends and ally that a village where they were digging for fresh water- they found barrels of AO- which had broken open- which explained why hundreds of children in that area and drinking the water was contaminated-and many were diagnosed with Leukemia and other types of cancer- after digging down deeper they found hundreds of barrels. Our Gov: went over to access the water and found it would take 100 years for the water to be drinkable again. The military didn’t think this stuff- these were all civilian contracts all about money-as always. JJAMES

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@colleenyoung

Good questions Teresa with respect to Agent Orange and neurological disorders. I’d like to bring @mivy @johnjames @ggopher @macbeth @retairforceman and @Robert43DAP into this conversation as they have experiences to share.

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@johnjames
O. K. Thank you.

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@retairforceman

@colleenyoung i still dont see anyway to post a jpg.

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I’ll send you a private message.

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@colleenyoung

Good questions Teresa with respect to Agent Orange and neurological disorders. I’d like to bring @mivy @johnjames @ggopher @macbeth @retairforceman and @Robert43DAP into this conversation as they have experiences to share.

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Morning
Can you kindly remove my e mail address from the email listing? thanks

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@colleenyoung

Good questions Teresa with respect to Agent Orange and neurological disorders. I’d like to bring @mivy @johnjames @ggopher @macbeth @retairforceman and @Robert43DAP into this conversation as they have experiences to share.

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Hi April, You can change your email notification preferences in Account Settings here: https://connect.mayoclinic.org/account

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@colleenyoung

Good questions Teresa with respect to Agent Orange and neurological disorders. I’d like to bring @mivy @johnjames @ggopher @macbeth @retairforceman and @Robert43DAP into this conversation as they have experiences to share.

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@johnjames There is no specific disorder that I’m researching. I just noticed a lot of conversations regarding neurological problems, especially Parkinson’s-like symptoms, and decided to open it up for discussion. It is good to see all of the posts. It has certainly been enlightening (as well as frightening) to see how many people have serious health problems related to AO. I hope that the dialogue continues and we can allow people a place to express their concerns.

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I was on 2 different US Navy destroyers during the Vietnam War but we never were involved with Agent Orange to my knowledge. The following links may help vets and family that were affected by Agent Orange.

What you need to know about agent orange:
http://www.blogs.va.gov/VAntage/17744/10-things-every-veteran-know-agent-orange/
How to go about getting help/compensation:
http://www.benefits.va.gov/compensation/claims-postservice-agent_orange.asp
Hoping you find answers and help you need…

John

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@colleenyoung

Good questions Teresa with respect to Agent Orange and neurological disorders. I’d like to bring @mivy @johnjames @ggopher @macbeth @retairforceman and @Robert43DAP into this conversation as they have experiences to share.

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Colleen- did my email go through jjames

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@colleenyoung

Good questions Teresa with respect to Agent Orange and neurological disorders. I’d like to bring @mivy @johnjames @ggopher @macbeth @retairforceman and @Robert43DAP into this conversation as they have experiences to share.

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It did and I sent you a reply. Did you check your spam? I will write you a private message.

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@colleenyoung

Good questions Teresa with respect to Agent Orange and neurological disorders. I’d like to bring @mivy @johnjames @ggopher @macbeth @retairforceman and @Robert43DAP into this conversation as they have experiences to share.

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College,
I am again writing to see if there is anyone who has been diagnosed with a cerebellum atrophy of the brain. My husband was diagnosed at Mayo Clinic in Jan. of 2015 in Rochester, Minnesota. He was given 3 to 4 years to live. It has been a year and a half since diagnosis. He is now walking with a cane and has trouble speaking clearly. He will soon have to use a walker. Then will be in wheelchair and probably pneumonia will set in and cause death. No one has responded to my post. This thing must be very rare.
Noreen

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@colleenyoung

Good questions Teresa with respect to Agent Orange and neurological disorders. I’d like to bring @mivy @johnjames @ggopher @macbeth @retairforceman and @Robert43DAP into this conversation as they have experiences to share.

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@howardjames
I had not yet heard of this one. I must say that I am very sorry for both of you, and that I find this condition very interesting. May I ask how they found the condition? MRI? CT scan?

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@colleenyoung

Good questions Teresa with respect to Agent Orange and neurological disorders. I’d like to bring @mivy @johnjames @ggopher @macbeth @retairforceman and @Robert43DAP into this conversation as they have experiences to share.

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MRI scan. This was taken to Mayo Clinic in Rochester and they did further tests and gave prognosis of 3 to 4 years to live. I have not found anyone with this diagnosis on this Mayo Clinic Line.

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@colleenyoung

Good questions Teresa with respect to Agent Orange and neurological disorders. I’d like to bring @mivy @johnjames @ggopher @macbeth @retairforceman and @Robert43DAP into this conversation as they have experiences to share.

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Teresa- I agree, I hope the conversations continue and we all can learn more about AO and not feel like we can difference. One issue that has affected me the last 6 months – is the attack on my immune system, which AO has a high rate of showing up with immune disorders that cause other health problems. I have had Pneumonia 4 times in the last 5 months, my Dr. believes is because of the immune system being so compromised, it also was the diagnoses of my low blood count for Iron, They sent me to the Cancer center for IV Infusions of Iron for two weeks in order to bring the blood count back up. One of the issues soldiers will tell other soldiers and chaplains -( is how alone they feel- most people who find out a soldier of any branch has AO disorder- they distance themselves- which I have found to be true with AO and more so with PTSD) many think PTSD is a sign meaning the person is dangerous – but if people would do the medical research- PTSD is where soldiers don’t want to be around people, stay alone, avoid crowds, parties, Malls, and they are very passive. Yes, there may be a case somewhere among so many – but usually it’s caused by other reasons that they have been experiencing -or a problem they have had for a while. The reason I researched it is because I have PTSD- and I loss my self worth, and I don’t hang around more than one friend and my wife- who is also a Viet Nam Nurse and Vet. We are really to private- Just Church and a few friends- which are 90% Military, or Law Enforcement. JJames

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@colleenyoung

Good questions Teresa with respect to Agent Orange and neurological disorders. I’d like to bring @mivy @johnjames @ggopher @macbeth @retairforceman and @Robert43DAP into this conversation as they have experiences to share.

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It was discovered by his local doctor who got an MRI. Then we went to Mayo. No one has replied with this diagnosis.

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@macbeth

@colleenyoung
@hopeful33250
All I know is that it has been recognized as related to a host of diseases in Vietnam vets, including Parkinson’s, diabetes, some cancers, and ischemic heart disease, among other conditions. The vet who helped us file a claim, at a nearby VA regional office, (and a comp doctor there) also believe it may also be connected to dementia/early onset dementia, which makes sense, due to the relationship to Parkinson’s and ischemic heart disease (the higher rate of ischemic build-up around the heart is bound to be happening elsewhere in the body – such as in the brain), but, that not enough veterans or their families are making the connection and filing claims. More claims filed = more attention from the government. Also, I am being told that it will take many more years of research before the connection is officially recognized between AO and dementias, in general. I realize that not everyone who gets a disease has a family history of that disease, but my husband’s family has no history of dementia, and I began to notice symptoms or wonder about him, as early as in his early – to – mid sixties, and maybe before that, looking back. But I was in denial. He also has the AO related ischemic heart disease. One of my brothers (Vietnam vet) had an AO related carcinoma, and had to have his leg amputated. It can wreak havoc decades after exposure. I know that many children of Vietnam vets have had problems that are being traced back to the AO exposure of a parent.

All you have to do, is begin to research this stuff on the net. There are a lot of very sad, very frustrating experiences related there.

I know that there is strength in numbers, and that being civil is very important, but that being tooooo polite does not get a job like this done. Vietnam veterans and their families need to be heard about these facts and overwhelming coincidences. They need to file claims. They need to write letters. They need to get louder. They need to push. They need to extend the support to Vietnam veterans that they rarely or never received for their service.

O. K. Now I’ll dust off my hands and get off my high horse. Can you tell I’m a little passionate about this?

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Hope you found the Article on the AO site- about the approval of skin cancer- caused by AO. JJAMES

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