Anyone have side effects after Lanreotide injection?

That sounds very uncomfortable, @dbamos1945. What does your doctor have to say about this? Are there any alternative meds that you might try?

April also gives you time to do research so you can make a informative decision
Good luck
Be well

@ teresa33250:
Lanreotide 28 day injections- I have taken them monthly since 10/21. My main concern is the boil-type sores that form around/on my nose and occasionally on my cheeks. They are firey red and very sore and remain for 4-5 days, then an infection fluid comes out and they slowly heal, but leave a scar mark. I have tried every remedy available with no luck; however, lately I have been applying retinol cream (Nutragena) on face every night. This has reduced the amount of sores and I think they heal up quicker.
I can’t swear this is caused by the Lanreotide injections, but I never had it before! I am 79 yrs old… you don’t suppose I am going through pimple puberty again , do you? 🙂

Thank you for telling me this! I felt like a wimp because of my array of symptoms, especially because I didn’t understand the need for the injection in the first place. One symptom was sufficient to condemn me to abject misery that I’m still waiting to go away.
Luckily I have till mid-April before my oncologist makes her next decision.

I am struggling with exhaustion and pain in my legs as well as a weight gain of 25 lbs in less than a year
I was suppose to get a mri and pet scan in February ( 4 months after my last PRRT treatment) but I had an URI and had to cancel
Rescheduled for March
My last set of bloods were good
Neurologist did an EEG and a vascular sonogram all good
Still unknown why I get severe pains in my temples and walk to the right side on numerous occasions
Cardiologist did a stress test EKG and an echocardiogram all good
Still unknown why my BP and pulse are so erratic
My cardiologist believes it is all from the octreotide but I don’t think stopping us an option to
I remain hopeful and grateful for every day
Thank you for asking

Hello @sophiarose

I appreciate your reply to @dbmenger about your difficulties with Lanreotide and Octreotide. It helps to see that everyone reacts differently to medications.

How are you feeling these days, sophiarose?

Before I was put on Lanreotide I had no symptoms
Lanreotide gave me such a horrible array of symptoms that after 3 injections I had to stop
I started octreotide had some side effects but nothing like lanreotide

She thinks we can stop the lanreotide now because she gave it to me only to stop the flushing, which it intensified. Looks as if I’ll just continue being a hot mess but hopefully without all the other side effects. I was curious as to when they’ll stop because feeling this way is not a good thing.

Hello @dbmenger,
Has your doctor offered you an alternative treatment if you discontinue the Lanreotide? If not, please inquire about an alternative. I look forward to hearing what others have used when Lanreotide has caused side effects.

Am I the only one that Lanreotide makes feel horrid? I’m nauseated and constipated with a cramp in my right side that encourages my IBS to act up.
My GERD has gone berserk and scoffs at both famotidine 40 mg and Nexium.
Then there are the migraines - even Ubrelvy can’t conquer them as one headache ends and another begins within minutes. I have insomnia and am sluggish and achy all day.
I also am mightily depressed because I have an active life that I’m viewing from the sidelines.
My oncologist says I can stop these shots after this, my second one, but I need to know how long or if I will feel this way forever. I got the shots in the first place because of the severe flushing, even though no tumors appeared on the scans and my Chromogranin A level was 607. After the first shot my level was 326. My oncologist is “aware” of my situation, according to her nurse but she gave no suggestions to alleviate these reactions so I thought I’d ask y’all for assistance and information.
Blessings!