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Anyone have side effects after Lanreotide injection?
Neuroendocrine Tumors (NETs) | Last Active: 1 hour ago | Replies (109)Comment receiving replies
Both an answer and a update: after yesterday's ending visit with the PRRT oncologist, she (as was my surgeon Wednesday) are pleased with the results showing both diminished and stablized cells. But, to counter my usual diarrhea effects of my lanreotide, she is prescribing Creon to counteract that. And also is referring me to a nephrologist since the treatments and contrast scans necessary for the NETs seem to have hurt my kidney functions. How does anyone handle all the diet limit ationsfor lanreotide, diabetes, and kidney health which seem to conflict with each other?
Replies to "Both an answer and a update: after yesterday's ending visit with the PRRT oncologist, she (as..."
Hello @brucegs,
You do have several different medical issues that affect your eating. As @maeve115 suggested, I would also recommend asking for a referral to a registered dietitian. Your oncologist or PCP should be able to provide a referral. I have had three surgeries for NETs, and I have met with a hospital dietitian several times; they are unsung heroes in medicine. They are quite capable of helping you develop an eating plan for different health issues.
Have you begun using Creon yet? If so, has it helped?
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@brucegs
It is good to read about your PRRT success. At the same time I am sorry that things are complicated by the co-morbids and need additional medical assistance. The diet limitations are such a challenge. I found help with a nutritionist who was willing to consider a range of ideas and a plan to help keep me on track. Palliative Care might also be a resource in coordination. Am so hoping you find the support needed to deal with all of this so that it can become less work to decipher and monitor. I am impressed with your Doctors that they caught the blood work and acted to find you a nephrologist.. and impressed with your questioning and concern. We are all learning self advocacy better and finding resources and solidarity together.