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Profile picture for Turkey, Volunteer Mentor @tomrennie

@micahnes Hi and welcome to Mayo Connect. I have been living with a pNET for four years. I do not get the lanreotide shot. I can't attribute any the symptoms that you described to my pNET. Are you still having them?

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Replies to "@micahnes Hi and welcome to Mayo Connect. I have been living with a pNET for four..."

@tomrennie hi and thanks for your interest. I stopped Lanreotide after only one month. Symptoms were significant. Most concerning to my oncologist were the slow heart rate, daily at rest 42-46 and dipped to 39 during sleep. My oncologist hypothesizes that all symptoms may be related to the heart rate. Additionally, my heart rate was low (50 resting and 45 in sleep) even before the injection. This may in some way be linked to the pNET. The lanreotide seemed to amplify this. My PET scan showed that my tumor was highly hyperactive in somostatin, while lanreotide is a synthetic somostatin. Does this make sense to anyone?