After a flare up recently my voice seems to have become veryelsyon

Posted by orian11 @orian11, Feb 10 5:14am

Has anyone else with PMR had issues with there voice mine seems to weakened recently Diagnosed with PMR 2 years ago

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

John, Volunteer Mentor | @johnbishop | Feb 10 7:16am

Hello @orian11, Welcome to Connect. I don't remember my voice being affected when my PMR was active but other members have mentioned their voice being affected by PMR. @redboat and @zaa mentioned similar symptoms and may have some information or thoughts to share.

Have you discussed the new symptoms with your doctor or rheumatologist?

orian11 | @orian11 | Feb 10 8:11am

In reply to @johnbishop "Hello @orian11, Welcome to Connect. I don't remember my voice being affected when my PMR was..." + (show)

Thank you for getting back to me so promtly and I will be seeing my Doctor in a day or two just to be safe

groksvaag | @groksvaag | Feb 11 12:16pm

I definitely had a weaker voice when I first started with hip and shoulder symptoms several months ago. Degree of weakness correlated with severity of other symptoms.

ropnrose | @ropnrose | Feb 11 1:03pm

My voice was weak early on in my PMR journey, which began spring 2024. As time went on, it improved back to normal.

pmrigca | @pmrigca | Feb 11 3:57pm

Hi,
Was prescribed 60 mg of Prednisone initially after the diagnosis of GCA and PMR was made.
Within a few days of taking of starting the regimen my voice changed.
I sounded hoarser and more like someone ten years older .
Over the treatment course, with tapering my voice is slowly returning
to how I sounded pre treatment for GCA PMR.
I attribute the change as a side effect of taking Prednisone, which seems minor , however this is only my opinion.
Possibly it is just one of the many wonderful side effects of a medication (Prednisone) which has best been described as a Howitzer used to kill flies.
Cheers

thereselefever | @thereselefever | Feb 12 7:27am

Good Morning:
I have had a PMR diagnosis for almost 2 years now. I am a musician, was a music teacher and choir director. The strength of my voice is directly related to my flare ups. The doctors were all not believing me and having me do this test and that test, but it all came back to PMR. I had to quit singing in any capacity because I just didn't know when my voice was going to work and when it wasn't. I have no control over it. This was happening before I was diagnosed and on prednisone.

I am a believer that PMR has a multitude of issues related to it that doctors haven't all put together.

Howdy! | @kereno | Feb 13 11:45am

I am coming to the conclusion that we have to let our hearts lead the way. There’s something to learn from everything. I am learning to be less driven and to switch gears and rest, to do more self-care. Our bodies and lives are in such a delicate balance. I’m sure I’ll be awakened to some other insight even today.