1. < Autoimmune Diseases

Afraid will not be taken seriously

Posted by apriljeff @apriljeff, Feb 25 2:41pm

I have been having an array of symptoms for the last 5 years. Most my lab works were normal except exterem vitamin D deficiency. On a whim I did a full panel testing for celiac and autoimmune disease due to being a carries of HLADQ 2.5. all results were normal exacted my Ana Was 1:160 homogeneous and high cerianine level (3rd year in a row). I don't know how I can discuss this with doctor and taken seriously to see what's going on. Some of the symptoms are: fatigue, hair loss, joint pain, neck pain, IBS (diagnosed) and others. Is there an advise on what to ask my doctor? Should ask to look into my thyriod? For the past 3 years as well high Tsh but normal t3 and t4. I don't know what to do to be taken seriously aside from prescribing vitamin d everytime.

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pb50 | @pb50 | May 21 2:04pm
In reply to @rashida "@pb50 do you take your Vitamin D supplement on the day you are having the blood..." + (show)
@rashida

@pb50 do you take your Vitamin D supplement on the day you are having the blood test?

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Yes. Is that contraindicated?

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rashida | @rashida | May 22 12:17am

@pb50 I don’t know. I have often wondered what one’s results would show if the supplement/medication were not taken on the day of the blood test. 🤷🏼‍♀️ Been meaning to find out …

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dlydailyhope | @dlydailyhope | May 22 6:55am
In reply to @apriljeff "Update 2: oh man where do I start. My ib ran hermone test and prescribed prestergon...." + (show)
@apriljeff

Update 2: oh man where do I start. My ib ran hermone test and prescribed prestergon. While the integrative MD looked into my labs, he prescribed levothyroxine 75mg, bunch of supplements and wants to put me on 90 days of whole 30 diet. I have not taken any of what they given me because am terrified of taking levothyroxine for a tsh thats only 6.5. I went glutin free for 5 weeks now, and have seen a minor improvement in energy but my joints still hurt. I am weighing my options before taking anymore medications.

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@apriljeff
I have Hashimoto’s thyroiditis and hypothyroid since my lobectomy due to a suspicious nodule on my right lobe of my thyroid. I started on 88 mcg and now on 100 mcg. I felt better taking the medication. Everyone is different on what an optimal TSH is. The range of “normal” may be 0.3-5.0 but I felt terrible if my TSH went above 1.0-1.5. I was like a zombie and could not get out of bed when my TSH went above 4.0 post surgery. If you are at a 6.5 TSH, that is above normal and means your pituitary gland is having to work extra hard to make thyroid hormone for you and your body may not be getting enough. Thyroid dysfunction can damage many organs/systems since the gland controls and regulates so much in your body so you really should take the prescribed Levothyroxine. Do you know your T3 and T4 levels? Do you know what your TSH was years ago when you felt better? This may tell you what a good TSH is for you. Have you been tested for TPO autoantibodies to see if your immune system is attacking your thyroid?

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pb50 | @pb50 | May 22 9:18am
In reply to @rashida "@pb50 I don’t know. I have often wondered what one’s results would show if the supplement/medication..." + (show)
@rashida

@pb50 I don’t know. I have often wondered what one’s results would show if the supplement/medication were not taken on the day of the blood test. 🤷🏼‍♀️ Been meaning to find out …

Jump to this post

@rashida
n general, it's recommended to continue taking your regular supplements, including vitamin D, before a blood test. However, you should only drink water before taking your blood sample on the morning of the test. It can take up to a day or longer for your body to metabolize vitamin D into the 25-hydroxy-vitamin D compound that's measured in blood

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