Afib and compression vest
I'm new to this group since I just spent a night in the hospital being told for the first time that I have Afib. It started Tuesday evening (my birthday) and lasted until Wednesday morning. They put me on eliquis and metaprolol. So it's been fine since. I also have pulmonary fibrosis and have been using a compression vest that fills with air and vibrates quickly to loosen mucus in my lungs. Does anyone have any thoughts as to whether this could possibly cause Afib or if continuing with it will aggravate it? I've used the vest for 2-1/2 months so far and no problems. I'd appreciate any advice you have.
Thanks
Interested in more discussions like this? Go to the Heart Rhythm Conditions Support Group.
@ktgirl I am just another afib patient but would think it is possible that the compression vest could be a trigger. Can you ask your doctor? My experience is that positioning, lifting. large meal (and my spinal fractures) compress my "innards" and can trigger afib, and compression from the vest you describe sounds like it might cause the same kind of internal pressure I have from those things. It could also affect the vagal nerve, which has been discussed here.
Can massage help your fibrosis or any other way to approach it?
How many hours was your episode? Did your heart rate go way up? Do you know your CHADS score (age, high bp, diabetes, F gender etc.)?
After my first episode I declined blood thinners and metoprolol (I have low bp and my CHADS was a 2). We are all different so not saying you should decline! I discussed meds at length with my doctor so he knew what I was doing and not doing.
Ten years later with one episode per year, I am still not on meds but have diltiazem and Eliquis "pill in a pocket" if I ever need them. I have an EP who agrees with me not taking meds daily finally. Again, you may be different/
Usually I go to ER with an episode due to low bp. My heart rate goes up close to 200.
It sounds like you have maybe found one trigger. I have slowly learned some of mine. As I implied above, a large meal later in the day, and reclining, is one of my main triggers so I don't eat large meals and I don't eat after 5 or 6pm. I sit straight after eating.
Other things I do: magnesium 600mg every night and low sodium V-8 for potassium every day.
Last year I bought "The Afib Cure" by John Day MD and another cardiologist. Day also has a website. You might want to grab a copy or order it in the library. There are things we can do to mitigate our situation if not "cure" it.
Sounds like a tough dilemma with the need for the vest but also the possibility it is a trigger. Also, is your pulmonary fibrosis related at all to the afib in terms of cause and effect?
Back in the area of 2004 to 2008, amioderone used to control Afib was causing 100% of the patients who used it, to develop pulmonary fibrosis. Reported by WebMD and released in a couple of studies.
My mother developed pulmonary fibrosis during this time and it was reportedly from the amioderone.
Vibrating and chest compression might be a trigger for you. Certain beats of songs or live music can trigger me. The good thing about that is that listening to other types of music can actually reduce and in some cases stop the. Afib.
Some foods will trigger me..,,
Speak with your doctor. Electrophysiologists will know the most current meds and treatments.,, if your doctor doesn’t know any thing about a treatment you are currently taking… Find another doctor.
Thanks for all your information. I really appreciate it.
My fibrosis is caused by my rheumatoid arthritis or scleroderma which is another autoimmune disease. The breathing difficulty causes my heart to beat harder and therefore it could cause problems. Your experience with eating is interesting. I've noticed too when I eat I feel like my stomach is in a knot and I need to sit more straight up in my chair. I'll check into that book too!
Thanks again,
Carol
@ktgirl I have a lupus diagnosis and very high antibodies for limited scleroderma. Not to create a tangent, but I gather you have fibrosis in lungs. Do you have pulmonary hypertension as well? Any chance GERD/reflux is affecting your breathing as well? I think the latter is why Gas-X helps me! (My lungs are still okay.) If it is the vest that is triggering afib, is there another way to deal with mucus in your lungs? Sounds like you are between a rock and a hard place!
Currently flecainide PIP (pill in pocket) works great for my brief afib episodes (2x/month) but I consider amiodarone as a back-up med in case of future need. Is there a study documenting that 100% figure I could take a look at? And was that higher dosages of amio, ie., 400 to 800 mg per day? My mother was on 100 mg amio daily for 24 years, never had another afib episode, and never had a single side effect; she was tested regularly, as recommended. But 100 mg is considered quite low. (And I've also been using therapeutic harp music to stop some episodes.)
HI Windy, Could I ask if you were taking less than 600 mg magnesium at any time, and was it effective to prevent afib episodes? I take 400 mg daily, but wonder if upping it to 600 might prevent more episodes. (And ditto re large meals... sometimes just certain acid food etc. will kick off an episode just after I eat. I actually sleep sitting up in a comfortable chair w/ feet up which helps w/ digestion.)
@drdianeschneider I don't know! The capsules I started with were 300mg and I take two, since one wasn't enough. If you are still having problems you could try 600mg but check with a doctor or pharmacist. The other thing that heads things off for me is simethicone (Gas X) then I burp 🙂
ps love the harp!
We should not- drink caffeinated drinks!