Advocate for yourself... ALWAYS!!!
Hi all. I'm Stage 5 CKD – ADPKD is my cause – and for the second time in two weeks I had to advocate for myself despite full medical histories being available.
An emergency room visit almost got me a shot of NSAIDs – despite my stating very explicitly that I can't have them due to severely impaired kidney function. And a routine MRI almost came with contrast dye (I can't imagine my nephrologist ordered it with..). In both cases the medical staff pooh pah'ed my concern until I asked for a second opinion.
Advocate for yourself constantly. Often times we know the ins and outs of our condition better than others.