Have not started yet. Next meeting with oncologist is this coming Wednesday. I am still not in favor of proceeding with docetaxel. I favor treatment that targets the cancer cells, not one which kills the good with the bad and then hopes you recover.
Hey redroad, glad to see you are still among the living!!
Your last post in December said you were in hospice care, waiting for the inevitable. At the time you had completely refused chemo. What changed your mind?
Phil
Three years diagnosed next week. Zytiga, followed by Xtandi and Talzenna (both sets failed after 14 months), five three week cycles of Docetaxel....horrible. Beard, all body hair, horrid intestinal issues, weak, wobbly, dizzy.......and it's declared "failed". PSMA PET scan yesterday, almost the same as earlier this year. Docetaxel, after all those issues, did nothing.
Find out in three days if I move to Pluvicto.
Strange.
Moving to Pluvicto. Waiting on a call.
More Docetaxel stuff.
One place I read Docetaxel can age you 10-13 years. It does.
76 tomorrow, I look late 80's, and did NOT when I was still on Talzenna and Xtandi.
The other is cardiac.
Read a lot of somewhat conflicting stuff, most talks about cardiac issues.
Two months before diagnosis, I happened to have a full cardiac workup.
EKG, pictures of heart and arteries, chemical stress test and down the hall for repeat pictures and EKG.
I was declared fine, no calcifications, no nothing.
Last PSMA PET scan 4 days ago showed some calcification issues. Not sure long term.
"Atherosclerotic vascular calcifications are present in the carotid arteries."
"There is atherosclerotic calcification in the aorta and iliac arteries without aneurysm."
Maybe I'll die WITH PC rather than OF PC!
Still feel like crxp, two weeks in to last Docetaxel cycle.
TOC
Moving to Pluvicto. Waiting on a call.
More Docetaxel stuff.
One place I read Docetaxel can age you 10-13 years. It does.
76 tomorrow, I look late 80's, and did NOT when I was still on Talzenna and Xtandi.
The other is cardiac.
Read a lot of somewhat conflicting stuff, most talks about cardiac issues.
Two months before diagnosis, I happened to have a full cardiac workup.
EKG, pictures of heart and arteries, chemical stress test and down the hall for repeat pictures and EKG.
I was declared fine, no calcifications, no nothing.
Last PSMA PET scan 4 days ago showed some calcification issues. Not sure long term.
"Atherosclerotic vascular calcifications are present in the carotid arteries."
"There is atherosclerotic calcification in the aorta and iliac arteries without aneurysm."
Maybe I'll die WITH PC rather than OF PC!
Still feel like crxp, two weeks in to last Docetaxel cycle.
TOC
Try some white button mushroom extract powder. Put 1/5 teaspoon in coffee or tea daily. In your case this is worth a try. I ve been on this for a year now. PSA remains .< .01
Moving to Pluvicto. Waiting on a call.
More Docetaxel stuff.
One place I read Docetaxel can age you 10-13 years. It does.
76 tomorrow, I look late 80's, and did NOT when I was still on Talzenna and Xtandi.
The other is cardiac.
Read a lot of somewhat conflicting stuff, most talks about cardiac issues.
Two months before diagnosis, I happened to have a full cardiac workup.
EKG, pictures of heart and arteries, chemical stress test and down the hall for repeat pictures and EKG.
I was declared fine, no calcifications, no nothing.
Last PSMA PET scan 4 days ago showed some calcification issues. Not sure long term.
"Atherosclerotic vascular calcifications are present in the carotid arteries."
"There is atherosclerotic calcification in the aorta and iliac arteries without aneurysm."
Maybe I'll die WITH PC rather than OF PC!
Still feel like crxp, two weeks in to last Docetaxel cycle.
TOC
I just want to point out that not every patient has extreme side effects from docetaxel. I don't want anyone to refuse it out of hand if your provider recommends it. Please consider giving it a try--my husband didn't have bad side effects, and it kept his Stage 4 cancer suppressed for years.
Thx for the hope. Had Lupron for 2 1/2 years effective. Recent metastasis to bones. Xtandi appears to not being effective. Next step will be chemo of Docetaxel. Disappointing that Xtandi didn’t help. Hormone resistant
.
Responding to the title "anybody on docetaxel". My experiences, and we're done with it now. Still recovering, two weeks today after last treatment.
I was told minimal side effects, with the caveat that the sessions were cumulative. That cumulative part was true.
Told me Docetaxel should put the PC in remission....5 cycles of misery and for ME it did nothing other than hold the line. I am glad it works for some.
25 years of Fibromyalgia probably did not help.
Last two sessions, about day 2 or three, horrible pains associated with metastasies points, figured Docetaxel was doing something....and now we know it wasn't.
That pain went away in six hours.
I read all three pages of this thread. I see a lot of posts with similar experiences to mine.
On diagnosis, I asked how long if I did nothing.
One year. Sometimes, feels like that would have been a better choice.....just sometimes, usually stuck in my recliner, exhausted.
After three years of this, they give me "average of two years". Quality of Life enters into this somewhere.
Onc seemed surprised Docetaxel didn't work.
Wonder if Pluvicto will do anything.
I guess I'll find out!
I should say, when Xtandi and Talzenna were working, PSA about .7? Started climbing, declared "failed", one month to clear it out, the ENTIRE TIME on Docetaxel, PSA in the 30's. Onc not worried, but now we know Docetaxel was, for me, ineffective.
Pluvicto.....supposed to be a wonder drug....we'll see what it does for my PSA!
Thx for the hope. Had Lupron for 2 1/2 years effective. Recent metastasis to bones. Xtandi appears to not being effective. Next step will be chemo of Docetaxel. Disappointing that Xtandi didn’t help. Hormone resistant
.
my husband is starting docetaxel thursday, he's been 3 months on Farziga (he doesn't want to switch to lupron yet) then a few weeks on zytiga and prednisone.
So far he "looks good" he's lost some weight but that's also because he switched his diet.
He goes to the gym daily and does stuff around the house.
He's tired and weaker and doesn't sleep well.
Because he looks so good, I'm scared about the docetaxel, that now he'll actually start to look SICK!
He's 55 and stage 4 metastatic with tumors or lesions all over his body according to the PET scan, but he doesn't feel it! No pain.....
Connect
Connect
Like
Helpful
Hug
Hey redroad, glad to see you are still among the living!!
Your last post in December said you were in hospice care, waiting for the inevitable. At the time you had completely refused chemo. What changed your mind?
Phil
Three years diagnosed next week. Zytiga, followed by Xtandi and Talzenna (both sets failed after 14 months), five three week cycles of Docetaxel....horrible. Beard, all body hair, horrid intestinal issues, weak, wobbly, dizzy.......and it's declared "failed". PSMA PET scan yesterday, almost the same as earlier this year. Docetaxel, after all those issues, did nothing.
Find out in three days if I move to Pluvicto.
Strange.
Moving to Pluvicto. Waiting on a call.
More Docetaxel stuff.
One place I read Docetaxel can age you 10-13 years. It does.
76 tomorrow, I look late 80's, and did NOT when I was still on Talzenna and Xtandi.
The other is cardiac.
Read a lot of somewhat conflicting stuff, most talks about cardiac issues.
Two months before diagnosis, I happened to have a full cardiac workup.
EKG, pictures of heart and arteries, chemical stress test and down the hall for repeat pictures and EKG.
I was declared fine, no calcifications, no nothing.
Last PSMA PET scan 4 days ago showed some calcification issues. Not sure long term.
"Atherosclerotic vascular calcifications are present in the carotid arteries."
"There is atherosclerotic calcification in the aorta and iliac arteries without aneurysm."
Maybe I'll die WITH PC rather than OF PC!
Still feel like crxp, two weeks in to last Docetaxel cycle.
TOC
-
Like -
Helpful -
Hug
1 ReactionTry some white button mushroom extract powder. Put 1/5 teaspoon in coffee or tea daily. In your case this is worth a try. I ve been on this for a year now. PSA remains .< .01
I just want to point out that not every patient has extreme side effects from docetaxel. I don't want anyone to refuse it out of hand if your provider recommends it. Please consider giving it a try--my husband didn't have bad side effects, and it kept his Stage 4 cancer suppressed for years.
-
Like -
Helpful -
Hug
2 ReactionsThx for the hope. Had Lupron for 2 1/2 years effective. Recent metastasis to bones. Xtandi appears to not being effective. Next step will be chemo of Docetaxel. Disappointing that Xtandi didn’t help. Hormone resistant
.
Responding to the title "anybody on docetaxel". My experiences, and we're done with it now. Still recovering, two weeks today after last treatment.
I was told minimal side effects, with the caveat that the sessions were cumulative. That cumulative part was true.
Told me Docetaxel should put the PC in remission....5 cycles of misery and for ME it did nothing other than hold the line. I am glad it works for some.
25 years of Fibromyalgia probably did not help.
Last two sessions, about day 2 or three, horrible pains associated with metastasies points, figured Docetaxel was doing something....and now we know it wasn't.
That pain went away in six hours.
I read all three pages of this thread. I see a lot of posts with similar experiences to mine.
On diagnosis, I asked how long if I did nothing.
One year. Sometimes, feels like that would have been a better choice.....just sometimes, usually stuck in my recliner, exhausted.
After three years of this, they give me "average of two years". Quality of Life enters into this somewhere.
Onc seemed surprised Docetaxel didn't work.
Wonder if Pluvicto will do anything.
I guess I'll find out!
-
Like -
Helpful -
Hug
1 ReactionI should say, when Xtandi and Talzenna were working, PSA about .7? Started climbing, declared "failed", one month to clear it out, the ENTIRE TIME on Docetaxel, PSA in the 30's. Onc not worried, but now we know Docetaxel was, for me, ineffective.
Pluvicto.....supposed to be a wonder drug....we'll see what it does for my PSA!
Did you try Zytiga before the Xtandi? Zytiga kept my husband's Stage 4 cancer suppressed for three years.
my husband is starting docetaxel thursday, he's been 3 months on Farziga (he doesn't want to switch to lupron yet) then a few weeks on zytiga and prednisone.
So far he "looks good" he's lost some weight but that's also because he switched his diet.
He goes to the gym daily and does stuff around the house.
He's tired and weaker and doesn't sleep well.
Because he looks so good, I'm scared about the docetaxel, that now he'll actually start to look SICK!
He's 55 and stage 4 metastatic with tumors or lesions all over his body according to the PET scan, but he doesn't feel it! No pain.....