Since my initial diagnosis and Surgery on Nov 2021, I've had 4 reoccurances of Low grade, low stage non muscle invasive bladder cancer. I was told from the start there's a 65% chance it comes back. I keep getting 3 bcg treatments every 6 months. In total I've received 21 to 24 of those. On my next cysto in Oct I'm gonna ask about this new treatment. On all of those reoccurances, they were able to remove them at the office thru the scope.
Just had cystoscopy after having cancer scraped out of bladder and 6 BCG treatments. Cancer is back and Dr. wants to do everything again. Wondering why he thinks it will work this time if not first time. Anyone else have the BCG more than once? What is Adstiladrin? Is this a Trial or approved treatment? Success rate? Good luck to us all.
I received a first dose of Adstiladrin on 7/26/24. Side effects during first 24 hours included fever, chills, body aches, and fatigue, which abated after 72 hours. I will schedule a blue light cystoscopy in about eight weeks to assess progress against NMIBC/CIS.
Hi @davidpball, I expanded the title of your discussion to hopefully attract more responses. As you likely know, Adstiladrin (nadofaragene firadenovec-vncg) was recently approved for bladder cancer. It is a gene therapy currently used for adult patients with high-risk Bacillus Calmette-Guérin (BCG)-unresponsive non-muscle invasive bladder cancer (NMIBC).
Colleen Young, Connect Director | @colleenyoung | Jul 24, 2024
Hi @davidpball, I expanded the title of your discussion to hopefully attract more responses. As you likely know, Adstiladrin (nadofaragene firadenovec-vncg) was recently approved for bladder cancer. It is a gene therapy currently used for adult patients with high-risk Bacillus Calmette-Guérin (BCG)-unresponsive non-muscle invasive bladder cancer (NMIBC).
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Since my initial diagnosis and Surgery on Nov 2021, I've had 4 reoccurances of Low grade, low stage non muscle invasive bladder cancer. I was told from the start there's a 65% chance it comes back. I keep getting 3 bcg treatments every 6 months. In total I've received 21 to 24 of those. On my next cysto in Oct I'm gonna ask about this new treatment. On all of those reoccurances, they were able to remove them at the office thru the scope.
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1 ReactionJust had cystoscopy after having cancer scraped out of bladder and 6 BCG treatments. Cancer is back and Dr. wants to do everything again. Wondering why he thinks it will work this time if not first time. Anyone else have the BCG more than once? What is Adstiladrin? Is this a Trial or approved treatment? Success rate? Good luck to us all.
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Helpful -
Hug
1 ReactionI received a first dose of Adstiladrin on 7/26/24. Side effects during first 24 hours included fever, chills, body aches, and fatigue, which abated after 72 hours. I will schedule a blue light cystoscopy in about eight weeks to assess progress against NMIBC/CIS.
Yes, I am scheduled to receive a first dose of Adstiladrin.
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1 ReactionHi @davidpball, I expanded the title of your discussion to hopefully attract more responses. As you likely know, Adstiladrin (nadofaragene firadenovec-vncg) was recently approved for bladder cancer. It is a gene therapy currently used for adult patients with high-risk Bacillus Calmette-Guérin (BCG)-unresponsive non-muscle invasive bladder cancer (NMIBC).
David, is Adstiladrin a treatment option for you?