I had recurrent low grade NMIBC for years. Had multiple resections which carried me for about 20 years, then had Mytomycin and BCG treatments only to later get high grade NMIBC. I suspect either the Mytomycin or BCG treatments elevated my cancer grade. My doctor now is suggesting Adstiladrin. Not sure if I want to take a chance on the cancer getting out of control but I don't have much faith in these treatments anymore. I've noticed for me that there is a link between inflammation and cancer recurrence. Cancer is a metabolic disease. We need to look at diet more closely for staving off future occurrences. After my next TURBT, I will go full keto with intermittent fasting. There are a lot of reputable studies now about this and it's looking as promising if not more than some of the these mediocre treatments. It is also important to mention that everyone has different food sensitivities that may be fueling their own cancer as no two humans are alike. I found out (through testing) that I am extremely sensitive to coffee. I've been drinking it for years. This very well may be my cancer cause. It may be different for you. Some food for thought...
Interesting perspective. I'm plant-based (vegan/vegetarian), diagnosed with high-grade NMIBC in 2023. BCG refractive after six treatments, now preparing for fourth Adstiladrin treatment. (Cystoscopies are clear so far, praise God). I suffer from chronic inflammation, perhaps due to stress and/or 2 - 3 cups of coffee daily. I suspect a potential bladder cancer link to mRNA COVID-19 vaccine, but no evidence to support this. Anyone care to opine on my conspiracy theory?
I had recurrent low grade NMIBC for years. Had multiple resections which carried me for about 20 years, then had Mytomycin and BCG treatments only to later get high grade NMIBC. I suspect either the Mytomycin or BCG treatments elevated my cancer grade. My doctor now is suggesting Adstiladrin. Not sure if I want to take a chance on the cancer getting out of control but I don't have much faith in these treatments anymore. I've noticed for me that there is a link between inflammation and cancer recurrence. Cancer is a metabolic disease. We need to look at diet more closely for staving off future occurrences. After my next TURBT, I will go full keto with intermittent fasting. There are a lot of reputable studies now about this and it's looking as promising if not more than some of the these mediocre treatments. It is also important to mention that everyone has different food sensitivities that may be fueling their own cancer as no two humans are alike. I found out (through testing) that I am extremely sensitive to coffee. I've been drinking it for years. This very well may be my cancer cause. It may be different for you. Some food for thought...
Thank you for this. It ties in with some other reading I have been doing about a connection between nutrition and cancer. Is there a particular reason why you have chosen Keto instead of Mediterranean or some other nutrition plan?
I was diagnosed with low grade NMIBC in December 2023, underwent TURBT in January 2024, had Mitomycin instilled in the bladder, then six BCG treatments. No further cancer was found until January 2025, when high grade NMIBC carcinoma in situ was found at a different location on the bladder wall. The cancer was surgically removed from the bladder wall and I received an Adstiladrin treatment nine days ago.
I had pronounced fatigue, fever for the first three days, chills, loss of taste, mental "fog" and decreased appetite. My doctor said that these side effects would lessen with time, but the fatigue continues. I am scheduled to have another cystoscopy at 75 days post-treatment, to evaluate the results. My doctor tells me the treatment will be repeated every 90 days, with no stop date. He says there is insufficient information available to him for him to determine when, or if, the treatments should end.
I had recurrent low grade NMIBC for years. Had multiple resections which carried me for about 20 years, then had Mytomycin and BCG treatments only to later get high grade NMIBC. I suspect either the Mytomycin or BCG treatments elevated my cancer grade. My doctor now is suggesting Adstiladrin. Not sure if I want to take a chance on the cancer getting out of control but I don't have much faith in these treatments anymore. I've noticed for me that there is a link between inflammation and cancer recurrence. Cancer is a metabolic disease. We need to look at diet more closely for staving off future occurrences. After my next TURBT, I will go full keto with intermittent fasting. There are a lot of reputable studies now about this and it's looking as promising if not more than some of the these mediocre treatments. It is also important to mention that everyone has different food sensitivities that may be fueling their own cancer as no two humans are alike. I found out (through testing) that I am extremely sensitive to coffee. I've been drinking it for years. This very well may be my cancer cause. It may be different for you. Some food for thought...
Fran,
Follow-up cystoscopies are clear after three of four Adstiladrin treatments (praise God), so treatments appear to be effective (with minor side effects).
Best wishes.
Interesting. I had my first treatment on March 11 and had fatigue and fever immediately after the treatment and then felt fine. Then this week, Monday, I thought I had the flu but symptoms, fatigue and a headache, have gotten better each day after. I don't know if I have had a bug of some sort, if it is the treatment or simply the fact i have not been able to exercise, etc.
Hello everyone -
I had my first Adstiladrin treatment 15 days ago, and am still experiencing a significant level of fatigue, requiring a nap of an hour or more midday. Has anyone else had this experience? Thank you.
Interesting. I had my first treatment on March 11 and had fatigue and fever immediately after the treatment and then felt fine. Then this week, Monday, I thought I had the flu but symptoms, fatigue and a headache, have gotten better each day after. I don't know if I have had a bug of some sort, if it is the treatment or simply the fact i have not been able to exercise, etc.
Hello everyone -
I had my first Adstiladrin treatment 15 days ago, and am still experiencing a significant level of fatigue, requiring a nap of an hour or more midday. Has anyone else had this experience? Thank you.
I was diagnosed with low grade NMIBC in December 2023, underwent TURBT in January 2024, had Mitomycin instilled in the bladder, then six BCG treatments. No further cancer was found until January 2025, when high grade NMIBC carcinoma in situ was found at a different location on the bladder wall. The cancer was surgically removed from the bladder wall and I received an Adstiladrin treatment nine days ago.
I had pronounced fatigue, fever for the first three days, chills, loss of taste, mental "fog" and decreased appetite. My doctor said that these side effects would lessen with time, but the fatigue continues. I am scheduled to have another cystoscopy at 75 days post-treatment, to evaluate the results. My doctor tells me the treatment will be repeated every 90 days, with no stop date. He says there is insufficient information available to him for him to determine when, or if, the treatments should end.
My first treatment was 3/11 and tolerated it fairly well. It was administered mid-afternoon and nurse told me I might feel side effects that day. Fairly mild. Fatigue and achy. The next morning I felt fine but by noon the achy feeling along with fatigue had returned and I had a slight fever. After that second day I was back to normal.
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Interesting perspective. I'm plant-based (vegan/vegetarian), diagnosed with high-grade NMIBC in 2023. BCG refractive after six treatments, now preparing for fourth Adstiladrin treatment. (Cystoscopies are clear so far, praise God). I suffer from chronic inflammation, perhaps due to stress and/or 2 - 3 cups of coffee daily. I suspect a potential bladder cancer link to mRNA COVID-19 vaccine, but no evidence to support this. Anyone care to opine on my conspiracy theory?
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1 ReactionThank you for this. It ties in with some other reading I have been doing about a connection between nutrition and cancer. Is there a particular reason why you have chosen Keto instead of Mediterranean or some other nutrition plan?
I had recurrent low grade NMIBC for years. Had multiple resections which carried me for about 20 years, then had Mytomycin and BCG treatments only to later get high grade NMIBC. I suspect either the Mytomycin or BCG treatments elevated my cancer grade. My doctor now is suggesting Adstiladrin. Not sure if I want to take a chance on the cancer getting out of control but I don't have much faith in these treatments anymore. I've noticed for me that there is a link between inflammation and cancer recurrence. Cancer is a metabolic disease. We need to look at diet more closely for staving off future occurrences. After my next TURBT, I will go full keto with intermittent fasting. There are a lot of reputable studies now about this and it's looking as promising if not more than some of the these mediocre treatments. It is also important to mention that everyone has different food sensitivities that may be fueling their own cancer as no two humans are alike. I found out (through testing) that I am extremely sensitive to coffee. I've been drinking it for years. This very well may be my cancer cause. It may be different for you. Some food for thought...
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1 ReactionFran,
Follow-up cystoscopies are clear after three of four Adstiladrin treatments (praise God), so treatments appear to be effective (with minor side effects).
Best wishes.
I have only recently heard of Adstiladrin, does anyone have results from treatment yet?
Thanks
Fran
I hope that, if it is one of the responses from the initial treatment, it won't recur after the second and subsequent treatments.
Dave
Interesting. I had my first treatment on March 11 and had fatigue and fever immediately after the treatment and then felt fine. Then this week, Monday, I thought I had the flu but symptoms, fatigue and a headache, have gotten better each day after. I don't know if I have had a bug of some sort, if it is the treatment or simply the fact i have not been able to exercise, etc.
Hello everyone -
I had my first Adstiladrin treatment 15 days ago, and am still experiencing a significant level of fatigue, requiring a nap of an hour or more midday. Has anyone else had this experience? Thank you.
I was diagnosed with low grade NMIBC in December 2023, underwent TURBT in January 2024, had Mitomycin instilled in the bladder, then six BCG treatments. No further cancer was found until January 2025, when high grade NMIBC carcinoma in situ was found at a different location on the bladder wall. The cancer was surgically removed from the bladder wall and I received an Adstiladrin treatment nine days ago.
I had pronounced fatigue, fever for the first three days, chills, loss of taste, mental "fog" and decreased appetite. My doctor said that these side effects would lessen with time, but the fatigue continues. I am scheduled to have another cystoscopy at 75 days post-treatment, to evaluate the results. My doctor tells me the treatment will be repeated every 90 days, with no stop date. He says there is insufficient information available to him for him to determine when, or if, the treatments should end.
My first treatment was 3/11 and tolerated it fairly well. It was administered mid-afternoon and nurse told me I might feel side effects that day. Fairly mild. Fatigue and achy. The next morning I felt fine but by noon the achy feeling along with fatigue had returned and I had a slight fever. After that second day I was back to normal.
-
Like -
Helpful -
Hug
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