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Anyone treated with Adstiladrin for BCG-unresponsive bladder cancer?
Bladder Cancer | Last Active: Jul 1 11:33am | Replies (68)Comment receiving replies
I was diagnosed with low grade NMIBC in December 2023, underwent TURBT in January 2024, had Mitomycin instilled in the bladder, then six BCG treatments. No further cancer was found until January 2025, when high grade NMIBC carcinoma in situ was found at a different location on the bladder wall. The cancer was surgically removed from the bladder wall and I received an Adstiladrin treatment nine days ago.
I had pronounced fatigue, fever for the first three days, chills, loss of taste, mental "fog" and decreased appetite. My doctor said that these side effects would lessen with time, but the fatigue continues. I am scheduled to have another cystoscopy at 75 days post-treatment, to evaluate the results. My doctor tells me the treatment will be repeated every 90 days, with no stop date. He says there is insufficient information available to him for him to determine when, or if, the treatments should end.
Replies to "I was diagnosed with low grade NMIBC in December 2023, underwent TURBT in January 2024, had..."
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I had recurrent low grade NMIBC for years. Had multiple resections which carried me for about 20 years, then had Mytomycin and BCG treatments only to later get high grade NMIBC. I suspect either the Mytomycin or BCG treatments elevated my cancer grade. My doctor now is suggesting Adstiladrin. Not sure if I want to take a chance on the cancer getting out of control but I don't have much faith in these treatments anymore. I've noticed for me that there is a link between inflammation and cancer recurrence. Cancer is a metabolic disease. We need to look at diet more closely for staving off future occurrences. After my next TURBT, I will go full keto with intermittent fasting. There are a lot of reputable studies now about this and it's looking as promising if not more than some of the these mediocre treatments. It is also important to mention that everyone has different food sensitivities that may be fueling their own cancer as no two humans are alike. I found out (through testing) that I am extremely sensitive to coffee. I've been drinking it for years. This very well may be my cancer cause. It may be different for you. Some food for thought...