Anyone treated with Adstiladrin for BCG-unresponsive bladder cancer?

I will let you know if I have any side effects.
Pill is oxybutyninttaken 3 days before and 2 days onand day after total 5

@rdbliven, welcome. As you prepare to start treatment with Adstiladrin in a couple of days, do you have any questions for fellow members?

@dboh48, how is your husband doing? Have the side effects lessened over the past couple of weeks?

Thanks. Oxybutynen tried but I started it late on 1st day. More than anything it’s been the frequent urination that’s still hanging on. Doc says it’s normal so I guess I need to quit whining!

Hope your symptoms are better. Have you given feedback to your doctor? ASO (pyridium over the counter) & oxybutynin were prescribed for me & helped.

I finished my 6 induction treatments and was surprised when they said no maintenance treatments even tho that was the original plan
(cytology & cystoscopy both neg). Recheck with c&c every 3 months for 2 years. Not sure why treatment plan changed....

Had my 1st BCG 1 of 3 maintenance two days ago. Tolerated the 2 hour hold pretty good but since lots of spasms and frequent urination Anyone else have this. It’s much different than the 1st 6.

Going for my first treatment 11/19/24 was given pills to abate bladder spasms was told side affects minimal.
Had BCG for 3 three years CIS popped up last scoping.

I received my second dose of Adstiladrin on Friday, 11/1/24. I experienced fatigue, headache, body aches, and other symptoms, which abated after 48 hours. Blessings to your husband for healing!

Hi,
My husband had Adstiladrin last week. 6 days ago. He is having significant fatigue, headache, chills, fever and body ache.
Has anyone here had those symptoms, and if so, how long did they go on?
Thank you.