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Anyone treated with Adstiladrin for BCG-unresponsive bladder cancer?

Posted by DAVID B. @davidpball, Jul 22, 2024

Does anyone have experience with adstiladrin for treatment of BCG refractive NMIBC?

Interested in more discussions like this? Go to the Bladder Cancer Support Group.

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allen1947 | @allenshirl | Jun 4, 2025
In reply to @davidpball "I was BCG refractory in early 2024 and underwent blue light cystoscopy with TURBT for NMIBC...." + (show)
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I was BCG refractory in early 2024 and underwent blue light cystoscopy with TURBT for NMIBC. I recently completed fourth Adstiladrin treatment with minimal side effects. I experienced 48 hours of flu-like symptoms (e.g. fatigue, body aches, chills) after initial treatment, but side effects diminished after 72 hours. Follow-on cystoscopies have revealed no evidence of tumors in bladder. I continue to pray for optimistic prognosis, with Anktiva a potential treatment option if Adstiladrin fails. Blessings to you and others as you travel your healing journey.

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Thank you for sharing. I hope you continue showing no evidence of tumors. Your experience gives me hope that my treatment will be successful too. Best of luck for your continued positive prognosis.

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djr5 | @djr5 | Jun 4, 2025
In reply to @allenshirl "I failed the BCG treatments after TURBT. 2nd TURBT shows aggressive high grade T1 with LP..." + (show)
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I failed the BCG treatments after TURBT. 2nd TURBT shows aggressive high grade T1 with LP invasion. Plan is for 3rd TURBT followed by Adstlidrin treatments.
I would like to hear from anyone who has had these treatments.

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I was diagnosed with low grade, NMIBC in 12-23, had TURBT, Mitomycin and the six BCG treatments. I was clear at six months, but in 01-25 was diagnosed with high-grade, aggressive NMIBC carcinoma in situ. I received an intravesical treatment of Adstiladrin on March 20, 2025, and had a cystoscopy this morning that found I am clear of any tumors. The next Adstiladrin treatment is June 20, and then every 90 days thereafter. I had fatigue after the first treatment but felt well by a few days out. I hope that Adstiladrin works as well for you as it has for me. Godspeed.

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allen1947 | @allenshirl | Jun 4, 2025
In reply to @djr5 "I was diagnosed with low grade, NMIBC in 12-23, had TURBT, Mitomycin and the six BCG..." + (show)
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I was diagnosed with low grade, NMIBC in 12-23, had TURBT, Mitomycin and the six BCG treatments. I was clear at six months, but in 01-25 was diagnosed with high-grade, aggressive NMIBC carcinoma in situ. I received an intravesical treatment of Adstiladrin on March 20, 2025, and had a cystoscopy this morning that found I am clear of any tumors. The next Adstiladrin treatment is June 20, and then every 90 days thereafter. I had fatigue after the first treatment but felt well by a few days out. I hope that Adstiladrin works as well for you as it has for me. Godspeed.

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Congratulations on being free of tumors! Thanks for sharing your experience- it provides me with optimism going forward. Good luck and good health to you.

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nana2three2025 | @nana2three2025 | Jun 10, 2025

I read Adstiladrin is used for CIS.
Is everyone treated with this have ONLY PAPILLARY TUMORS without CIS?

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vejan738 | @vejan738 | Jun 13, 2025

waiting to start my treatment with AdStiladrin - hopefully next week

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djr5 | @djr5 | Jun 13, 2025
In reply to @vejan738 "waiting to start my treatment with AdStiladrin - hopefully next week" + (show)
Profile picture for vejan738 @vejan738

waiting to start my treatment with AdStiladrin - hopefully next week

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Hope it is successful. I am due for my second treatment next Friday. It has been very effective.

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allen1947 | @allenshirl | Jun 14, 2025

How long after surgery did you have the first treatment?

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djr5 | @djr5 | Jun 15, 2025
In reply to @allenshirl "How long after surgery did you have the first treatment?" + (show)
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How long after surgery did you have the first treatment?

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The cancer was found on January 24, 2025, and I received the first Adstiladrin treatment on March 20, 2025. I had the initial TURBT for low-grade NMIBC in January 2024, Mitomycin and BCG through the spring, remission by June 2024, then discovery of high-grade, NMIBC CIS in January 2025 for which I did not have surgery, but received the Adstiladrin.

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bubbablue | @bubbablue | Jun 17, 2025
In reply to @vejan738 "waiting to start my treatment with AdStiladrin - hopefully next week" + (show)
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waiting to start my treatment with AdStiladrin - hopefully next week

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Starting my first Adstiladrin session on July 9th. Hopeful-----3 scrapings in the last 15 months. A total of 18 BCG--DARN STUFF JUST KEEPS COMING BACK.

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