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Adenocarcinoma of the endometrium: Pre-op prep & Diagnosis
I was diagnosed on Nov 14, about a month after I had one episode of dark vaginal spotting. My gynecologist ordered a trans Vagina ultrasound which showed my endometrium was 10,3 mm and should be less than 4. Also a complex ovarian cyst and large uterine polyp. He drew a C125 and we scheduled an endometrial biopsy. C125 was slightly elevated so he immediately referred me to the gyneoncologist and did the biopsy. I saw the oncologist 6 days later and the biopsy still wasn’t back. He was not happy and apologized saying I can’t tell you what to do til I get the biopsy. He gave me a from to scenario. I asked about the ovarian cyst which he said not to worry about but drew an He4 ovarian marker which was normal. He called my OB and said someone call that lab and tell them I want that report today. About an hour after I got home my gynecologist called and said he had a verbal which indicated endometrial adenocarcinoma , well differentiated which he told me was positive. He said he was calling the oncologist who immediately called me. I am scheduled for a devinchi robotic hysterectomy, removal of tubes, ovaries, cervix and sentinel node biopsy. Had to wait 15 days to get in the schedule. I am a nurse, retired in September, and I don’t know if that is helpful or a hindrance because I know so much. I also read too much. My emotions go from near panic to knowing as much as I can. My grandmother and brother died from colon cancer. I’ve never been pregnant, menopause didn’t start til age 55 and I’m overweight. All risk factors. My father died of lung cancer. I have a daughter which I adopted as a single parent. Surgery is 3 days from today. My daughter is driving home right now. She lives 750 miles away. Telling her was the hardest thing. It’s just the two of us. Fortunately I have many friends and a strong faith with a wonderful church family. I begin a pre surgery protocol tomorrow. Two days of a high carb diet. The morning of surgery 32ounces of Gatorade 4-6 hours before surgery. 3 hours before 8 more ounces with 1000 mg of Tylenol and 800 mg ibuprofen. This preop preparation I was not familiar with. Still have my times of high anxiety but am just needing to get the surgery over and have a final path report. So happy to have found this group
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A cancer surveillance check are the follow-up appointments that are scheduled on a regular basis depending on lots of factors including the type of cancer, the stage, and what your surgeon recommends. I chose to return to Mayo for those follow-ups as we (my husband and I) feel the small rural area does not provide the cancer follow-up care that I need. Here is a description of cancer follow-up plan (Cancer Survivorship Plan) you will be given by your doctor at Mayo at some point - probably at your first follow-up appointment after your surgery.
Cancer Survivorship Plan
-- https://www.mayoclinichealthsystem.org/hometown-health/speaking-of-health/the-importance-of-a-cancer-survivorship-care-plan
-- https://www.mskcc.org/hcp-education-training/survivorship/survivorship-care-plan
I am so sorry to hear that the cancer returned and you had to have radiation. What is a cancer surveillance check? Do you get those at Mayo or with your hometown doctor?
@cynthiaslife I had a radical hysterectomy at Mayo Clinic in Rochester in 2019 after I was diagnosed with endometroid adenocarcinoma, Stage 1a. I had a recurrence in October, 2021 after a small growth was found in the vaginal cuff during a cancer surveillance appointment. I returned to Mayo Clinic in December, 2021 for radiation treatments. I've been keeping up with my appointments and now almost a year after I started those radiation treatments I'm doing well and no further signs of that cancer. It's a day's drive for us to get to Mayo Clinic but it's so worth it. I feel I've received excellent care there as will you.
Yes, I will be at Mayo Rochester. Where are you having your surgery at? Can I ask why you were at Mayo last year? I have never been there before.
@cynthiaslife Your surgery is scheduled this coming week (December 8) at Mayo in Rochester? If it's cold enough in Mayo there will be a huge skating rink in Soldier's Field that I discovered when I was at Mayo last winter. If you feel like a walk the day before your surgery Soldiers Field is a nice place to walk.
You will be in such good hands at Mayo. I felt like I was surrounded by angels from the moment I checked in. That helped me so much with all the anxiety I felt and I am hoping the same for you.
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1 ReactionI am in Wilmington North Carolina. I feel fortunate to have the hospital and cancer treatment center less than 15 minutes from my house. Safe travels. Hope you have time this week to rest up for the trip and big day.
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1 ReactionHow are you doing now that it has been a couple of days since your surgery?
Yes, let's be buddies. I have a lot of people praying also. I will pray for you too. They changed my surgery date so now it is December 8th. Are traveling from far away? If so, which hotel are you staying in? I will be at the Center stone Plaza Hotel Soldiers Field.
Thank you for this info of staging. Per my gyne -oncologist my biopsy result is stage IIIA. After a week of TAHBSO I had loose bowel movement my gyne-onco advised me to stay hydrated and just recently Im on normal bowel movement.
We will keep on uplifting our worries and illness to the Lord.
Jlb333@jlb333 So glad you are home and doing well ! Keep the group updated. Kudos to jumping this hurdle! I continue prayers for you and ask for yours for me and my 12/7 surgery date. We’re you given any idea yet of further treatment ? Were any lymph nodes removed ?
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