Adenocarcinoma - newly diagnosed

Posted by Sandy @pixiedust, Feb 26, 2023

Hello. I am new to this group. Thank you in advance for any guidance and or support you have to offer. I have been diagnosed with adenocarcinoma of the upper right lung. Have had a bronchocoscopy, x-rays, CT and lung biopsy - which determined the diagnosis. I have an appointment this Tuesday for a PET scan to determine staging, and a breathing test will follow. The only symptom I have had is hoarseness in my voice. Otherwise I feel fine. I am simply terrified and still in shock.
Pixiedust

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Diane,
Sorry about your long time enduring this. It gets old real quick. I also taking Levofloaxin right now. Because I was running a slight fever. They did bloodwork and my WBC was at 0.7. I had tongue sores fever blisters and just felt and looked horrible. They did some cultures and bloodwork and when I went back on Monday she said the tests came back negative and that my WBC was up again. He only explanation was it was both the Radiation and chemo side affects hitting me at once.

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@pixiedust

Yes, they also said mine was IIIB...but I'm 77 years old, so I think that's part of it as well as the degree of difficulty getting at the lymph nodes. The radiation was not easy, but I think the chemo was worse...at the 6th week. What a mess I was..it made me so sick with nausea, diarrhea, and extreme fatigue. But the last one was not so bad as they upped the anti-nausea med. They also put me on Omeprazole 40mg and Sucralfate for the "acid reflux". Personally, I don't think it does much, but I will finish taking it. I truly believe that the surgery is not an option at this point, so not sure what the immunotherapy will do other than buy a little time. I did look up the side effects of Imfinzi - not pretty 🙁

Anyway, you keep us posted as well. Sending hugs..
Sandy

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I have reflux, not due to chemo, just due to a condition. The webmd website for GERD triggers might offer some hints that can help while you go through this. I drink hot chamomile tea with some meals, too. https://www.webmd.com/heartburn-gerd/triggers

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Hello Everyone! I’m reading your thread and I just want to say I hope you all get better SOON! God Bless you all!
Cindy

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@cmcguire10

Hello Everyone! I’m reading your thread and I just want to say I hope you all get better SOON! God Bless you all!
Cindy

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Hello!
Thank you Cindy!

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@donnatownsend

Diane,
Sorry about your long time enduring this. It gets old real quick. I also taking Levofloaxin right now. Because I was running a slight fever. They did bloodwork and my WBC was at 0.7. I had tongue sores fever blisters and just felt and looked horrible. They did some cultures and bloodwork and when I went back on Monday she said the tests came back negative and that my WBC was up again. He only explanation was it was both the Radiation and chemo side affects hitting me at once.

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Hope you feel better soon. I know what you mean about looking terrible. I had a cold with chemo and I looked like a raccoon or a vampire.

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Hello- My name is Merry, and I am one of the Mentors for this group. My first lung cancer was in 1981, and I have Multi-focal adenocarcinoma. I have met some of you before. It is an adenocarcinoma, and many of the treatments can be tough. I've had two lobotomies and 3 SBRTs, the last one last October. My chemo wasn't as bad as the previous radiation that I had last October.

I had a horrible time as I also, it seems, have sensitive lungs and wound up on prednisone and oxygen for many months. But I did heal and am no longer on either of them! This Tuesday, I have my first follow-up CT since the radiation. Since I live in the North East, I go to Mass General in Boston.

It's been a very long haul for me, and this year I also lost my caretaker and husband of 45 years. It was the first time that I had to care for myself. It was hard and miserable. And tomorrow will mark 3 months since I lost my husband. I'm bringing my younger sister with me in case...I surely don't want to be alone.

There's no way around it, Cancer sucks, and treatments can be awful. I've read that some of you use Omeprazole. I was on it for many years but had to get off of it because it wasn't advisable to take it with Prednisone. I was switched to Pantoprazole. I find that it is much better and have heard many people say that. I rarely have breakthrough GERD now. Or, maybe I've had GERD so long I don't have a stomach either? lol

I'll try to catch up and get to know you all as much as possible. Please feel free to ask me questions. I will try and match your names to your cancer-but no promises!

Merry

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@merpreb

Hello- My name is Merry, and I am one of the Mentors for this group. My first lung cancer was in 1981, and I have Multi-focal adenocarcinoma. I have met some of you before. It is an adenocarcinoma, and many of the treatments can be tough. I've had two lobotomies and 3 SBRTs, the last one last October. My chemo wasn't as bad as the previous radiation that I had last October.

I had a horrible time as I also, it seems, have sensitive lungs and wound up on prednisone and oxygen for many months. But I did heal and am no longer on either of them! This Tuesday, I have my first follow-up CT since the radiation. Since I live in the North East, I go to Mass General in Boston.

It's been a very long haul for me, and this year I also lost my caretaker and husband of 45 years. It was the first time that I had to care for myself. It was hard and miserable. And tomorrow will mark 3 months since I lost my husband. I'm bringing my younger sister with me in case...I surely don't want to be alone.

There's no way around it, Cancer sucks, and treatments can be awful. I've read that some of you use Omeprazole. I was on it for many years but had to get off of it because it wasn't advisable to take it with Prednisone. I was switched to Pantoprazole. I find that it is much better and have heard many people say that. I rarely have breakthrough GERD now. Or, maybe I've had GERD so long I don't have a stomach either? lol

I'll try to catch up and get to know you all as much as possible. Please feel free to ask me questions. I will try and match your names to your cancer-but no promises!

Merry

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Hi Merry!
I’m so sorry for your loss. My husband is my Caretaker too. It’s scary because he is 14 years older than me and has health issues of his own. We’ve been together for over 38 years. He was I. The Hospital after having a quadruple bypass surgery when I first started finding out about me. I’ll be praying for you. And my Oldest sister goes with me a lot because my husband is still going to Cardiac Therapy.
Donna

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Hi Merry! I, too, am sorry for your loss. My first husband passed from cancer in 1998. We were together 15 years and had 3 young children. Now this year I was diagnosed with Adenocarcinoma. Had my LUL segmentectomy and small wedge and my second husband takes care of me when I have a surgery. We’ve been together 24 years so far. I, also, am too familiar with loss but WE seem to be strong people. YOU have been through a lot and yet, HERE YOU ARE! GOD BLESS YOU!
Cindy

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@merpreb

Hello- My name is Merry, and I am one of the Mentors for this group. My first lung cancer was in 1981, and I have Multi-focal adenocarcinoma. I have met some of you before. It is an adenocarcinoma, and many of the treatments can be tough. I've had two lobotomies and 3 SBRTs, the last one last October. My chemo wasn't as bad as the previous radiation that I had last October.

I had a horrible time as I also, it seems, have sensitive lungs and wound up on prednisone and oxygen for many months. But I did heal and am no longer on either of them! This Tuesday, I have my first follow-up CT since the radiation. Since I live in the North East, I go to Mass General in Boston.

It's been a very long haul for me, and this year I also lost my caretaker and husband of 45 years. It was the first time that I had to care for myself. It was hard and miserable. And tomorrow will mark 3 months since I lost my husband. I'm bringing my younger sister with me in case...I surely don't want to be alone.

There's no way around it, Cancer sucks, and treatments can be awful. I've read that some of you use Omeprazole. I was on it for many years but had to get off of it because it wasn't advisable to take it with Prednisone. I was switched to Pantoprazole. I find that it is much better and have heard many people say that. I rarely have breakthrough GERD now. Or, maybe I've had GERD so long I don't have a stomach either? lol

I'll try to catch up and get to know you all as much as possible. Please feel free to ask me questions. I will try and match your names to your cancer-but no promises!

Merry

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Hi Merry,
I came to know that your cancer was detected in 1981.which stage it was and now. What type of food you are taking ? Kindly tell me . My wife was diagonished stage IV lung cancer in March,2023 and she is taking Tagrisso. Now she is almost Ok.
Surajit

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Hello Surajit- Good afternoon. I wish it were as simple as selecting food to help live a long life. It isn't. I wish that I had a magic wand for you, but I don't. It's just luck, plain ole boring luck.

Actually, my very first cancer was a very fast-growing adenocarcinoma and because it was found early enough - well, maybe that was the reason that it didn't return. I just don't know. Since you know that after 10 years lung cancer came back - but in a different form. Who knows why it changed? And why has it returned only a few times rather than much more? I do not know.

I don't even take "cancer" medications, just an inhaler to help open up my tubes to breathe more easily.

I'm very sorry you must watch your wife suffer from lung cancer. It must be very difficult. The medication that she is on is a good one. I suggest that your wife eat what she wants as she is the one who must be comfortable. Try and purchase clean, organic foods, and if she can, let her eat from a variety of colorful vegetables and fruits, and legumes. There is no sense in asking her to eat something not in your normal diet because then she might not like it and not eat.

Is your wife up and around? Does she get up and walk outside? With you?

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