Adenocarcinoma - newly diagnosed

Posted by Sandy @pixiedust, Feb 26, 2023

Hello. I am new to this group. Thank you in advance for any guidance and or support you have to offer. I have been diagnosed with adenocarcinoma of the upper right lung. Have had a bronchocoscopy, x-rays, CT and lung biopsy - which determined the diagnosis. I have an appointment this Tuesday for a PET scan to determine staging, and a breathing test will follow. The only symptom I have had is hoarseness in my voice. Otherwise I feel fine. I am simply terrified and still in shock.
Pixiedust

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@darlenecaywood164

Ho2 long was the process from 1st test to final diagnosis? To treatment?

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Hi @darlenecaywood164, from my initial visit to an urgent care office to having a targeted therapy treatment in hand, it took 2 months. While it didn’t seem like it at the time, the wait was worth it, as that time was used to identify exactly what was driving the cancer. That led me to a treatment that was a good fit for my cancer. I hope your PET scan is scheduled soon, and you get some positive answers.

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@juneoake

I am recovering from a lower left lung lobectomy to rid me of early stage carcinoma. Pathology tests after surgery tells me I am totally cancer free! No chemo or radiation required, best news ever. However the surgery was not easy. Still trying to get rid of the nerve pain and pulling, hoping it doesn’t last too long!

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I know what you mean. I had RUL removed in 2016. The surgery was easy, but recovery not so much. It will get better each week. Hang in and God bless you

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I am recovering from a lower left lung lobectomy to rid me of early stage carcinoma. Pathology tests after surgery tells me I am totally cancer free! No chemo or radiation required, best news ever. However the surgery was not easy. Still trying to get rid of the nerve pain and pulling, hoping it doesn’t last too long!

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@angelfran

Congrads! Cindy what great news.
My Dr has recommended radiation treatment to remove it.
IMRT, not sure if I have name correct. One treatment runs 5 days in length, the other approx 6 weeks. My cancer is .3 cm, right outside wall.
Thanks

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Ho2 long was the process from 1st test to final diagnosis? To treatment?

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@angelfran

Congrads! Cindy what great news.
My Dr has recommended radiation treatment to remove it.
IMRT, not sure if I have name correct. One treatment runs 5 days in length, the other approx 6 weeks. My cancer is .3 cm, right outside wall.
Thanks

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IMRT is correct. Intensity Modulated Radiation Therapy means that they can control the depth at which the radiation is applied, meaning there won't be any skin damage. They still control the width by using lead plates. As far as I know, it's still the latest and greatest, so good for you! I had 33 treatments 5 years ago. Hard for me to tell the side effects because I was getting chemo at the same time. I had my treatments on weekdays, and they gave me every weekend off.

My father-in-law had radiation only to remove his lung cyst last year. It was completely successful and his cancer has not returned. I hope the same outcome for you!

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@cmcguire10

Welcome, unfortunately, to our group of wonderful and knowledgeable people who share in the shocking diagnosis of cancer.
What form of treatment is your Dr. recommending? What size is your cancer and what part of the lung is it in? This group of people are awesome at giving good quality information as well as experiences that can help you with almost any question you could have. Of course, your best source of information should be your Dr.
I am at almost 3 months post-op for adenocarcinoma of the left upper lung (LUL). Segmentectomy and a small wedge resection as well to remove it. Mediastinum nodes removed as well. No cancer in any nodes and my cancer was 1.5 cm.
Wishing you the best of luck!
Cindy

Jump to this post

Congrads! Cindy what great news.
My Dr has recommended radiation treatment to remove it.
IMRT, not sure if I have name correct. One treatment runs 5 days in length, the other approx 6 weeks. My cancer is .3 cm, right outside wall.
Thanks

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Hello. Happy for your follow up response. The doctors are thinking radiation will be enough to address the findings. My cardio thoracic surgeon stated I would be a high risk patent due to the invasive procedure. Consultation with the radiation oncologist is where things are today. I was informed of the two differing treatments, time lines and possible side effects. Currently I am seeking 2nd opinion consult from EMORY where me family resides.

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@angelfran

Hello. Today I found this Blog. Thanks for your presence and whatever guidance/help you can offer.
I AM IN SHOCK!
In May 2023, my Pulmonary doctor informed me that I had Adenocarcinoma Cancer. The doctor along with pathology procedures identifying nodular growth and changes from a year ago. To date no changes have occurred.

I have gone through many procedures; bronchoscopy, biopsy, CT scan, PET scans.
Presently awaiting start place, date/time radiation.

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Hi @angelfran, I'm glad that you found us, but so sorry that you are dealing with this recent diagnosis. It's never something that we expect, and many of us have been in your shoes.
There has been a helpful ongoing discussion about radiation of the lung, that you can find here: https://connect.mayoclinic.org/discussion/radiation-treatment-on-lul/
Are the doctors thinking that radiation should be enough to address the nodule?

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@angelfran

Hello. Today I found this Blog. Thanks for your presence and whatever guidance/help you can offer.
I AM IN SHOCK!
In May 2023, my Pulmonary doctor informed me that I had Adenocarcinoma Cancer. The doctor along with pathology procedures identifying nodular growth and changes from a year ago. To date no changes have occurred.

I have gone through many procedures; bronchoscopy, biopsy, CT scan, PET scans.
Presently awaiting start place, date/time radiation.

Jump to this post

Welcome, unfortunately, to our group of wonderful and knowledgeable people who share in the shocking diagnosis of cancer.
What form of treatment is your Dr. recommending? What size is your cancer and what part of the lung is it in? This group of people are awesome at giving good quality information as well as experiences that can help you with almost any question you could have. Of course, your best source of information should be your Dr.
I am at almost 3 months post-op for adenocarcinoma of the left upper lung (LUL). Segmentectomy and a small wedge resection as well to remove it. Mediastinum nodes removed as well. No cancer in any nodes and my cancer was 1.5 cm.
Wishing you the best of luck!
Cindy

REPLY

Hello. Today I found this Blog. Thanks for your presence and whatever guidance/help you can offer.
I AM IN SHOCK!
In May 2023, my Pulmonary doctor informed me that I had Adenocarcinoma Cancer. The doctor along with pathology procedures identifying nodular growth and changes from a year ago. To date no changes have occurred.

I have gone through many procedures; bronchoscopy, biopsy, CT scan, PET scans.
Presently awaiting start place, date/time radiation.

REPLY
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