Adding digestive enzyme supplements

Posted by djfone @djfone, 3 days ago

My husband is 8 weeks post Whipple. Not tolerating food very well. MD wants to add digestive enzymes to regimen. Any experience with them?

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Profile picture for Turkey, Volunteer Mentor @tomrennie

@djfone Sorry to hear that about your husband. Most folks on here have had to resort to digestive enzymes post Whipple. Fortunately, @matt2024 has shared his experience. Thank you Matt. The chemo is probably contributing to your husband's discomfort. What chemo is he on?

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@tomrennie
Thank you! 5-FU, Oxaliplatin, Irinatecan

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Profile picture for marymichaels @marymichaels

@matt2024

Thank you, Matt. This is very helpful. I started Creon 1 week ago and I am still trying to find the right dosage. (It's not working, so far.)
I'm working with my doctor to address this.

-Mary

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@marymichaels do you have a Nurse Ambassador with Abbvie? Mine has been super helpful. I had Whipple surgery Nov 2024 and started Creon in Dec. It's been a game changer. I take three 24K capsules prior to my 3 meals daily and 1 or 2 with snacks. I was taking 2 capsules before meals and had some issues with diarrhea. My Oncologist suggested 3 capsules before meals and that made all the difference for me. I hope you can find the perfect dose!! Good luck!

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Profile picture for baravelli @baravelli

@marymichaels do you have a Nurse Ambassador with Abbvie? Mine has been super helpful. I had Whipple surgery Nov 2024 and started Creon in Dec. It's been a game changer. I take three 24K capsules prior to my 3 meals daily and 1 or 2 with snacks. I was taking 2 capsules before meals and had some issues with diarrhea. My Oncologist suggested 3 capsules before meals and that made all the difference for me. I hope you can find the perfect dose!! Good luck!

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@baravelli
Not yet. I think they have been trying to get me. I returned the call today & hopefully they will call back. Thanks so much for your encouragement!

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