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Acoustic Neuroma: Balance issues years after treatment

Posted by mollybrownbeard @mollybrownbeard, Aug 9 5:35pm

Acoustic Neuroma in 2012.
I had radiation surgery in 2014.
In 2018 I was unable to balance well enough to walk.
***** Anyone else go through this?
Not being able to balance well enough to walk has been a total nightmare!

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Randy Shields | @randallshields56 | Dec 15 11:10am
In reply to @ejclark "I'm a 63 yr old female, My left acoustic neuroma was dx in 2014. I had..." + (show)
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I'm a 63 yr old female, My left acoustic neuroma was dx in 2014. I had the linear accelerator procedure at Jefferson in Philly in 2016. After two years of "watch and wait" with Penn. Initial left sided facial drooping, but thankfully that resolved. Tinnitus and hearing loss managed with hearing aid. Balance is ok, for the most part, except at night, I need a walking stick (far too cool for a cane) However recently I have been experiencing daytime balance issues and vertigo. I feel sea sick most of the day. My 2 yr MRI is due in 3 months. The last neurosurgeon I saw was dismissive, telling me my tumor was "fine". As a psychiatric NP, I found that laughable. So I am going back to my ENT for management of vertigo. Meclizine knocks me out, and I am a very busy provider, so I hope a scopolamine patch will be prescribed. And maybe he can order my next MRI, so I can get this done after the holidays. I don't know if this helped, but just to let you know you are not alone. After reading all of the comments, our successes are varied as we are.

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@ejclark thank you for your input and sharing this. it happens all too often to too many. could be our age or just something said wrong to a question. but after 65 plus years in the same body you would think that we have a clue as to what we are talking about. dismissive doesn't work for me ,i want to see 100 plus years and break a new pattern by then. scientists discover almost daily new cures or a variety of great things. no two are alike but we have the same genes and want to see our kids grow and flourish and have this generation of new doctors hear us out. Its time. I just turned 69 and am grateful to have a great team of support here at Mayo Connect . every place you turn you have support and knowledge through those going the same directions and testing and support groups. the stories and related issues bond people together. Thank you for your posting. Have a blessed day. sending prayers

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mollybrownbeard | @mollybrownbeard | Dec 17 11:45pm
In reply to @mmm "Thank you for sharing your experience, and please keep us informed. May the force be with..." + (show)
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Thank you for sharing your experience, and please keep us informed. May the force be with you!

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Thank you ALL 🤗

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