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Achalasia Chronic pain

Posted by ed32 @ed32, Jul 26, 2017

I have been dealing with achalesia for over 3 years now. Had poem and fundopliacation surgery. Pain was reduced but coming back. Have difficulty mediating because my breathing is interupted by extreme burping to let off pressure. I have had to use oxycodon on a regular basis for the last few weeks. I am trying to avoid opiods. Have done some walking meditation but having difficulty exercising. Anyone have an idea? I am not doing well. I am contiuing treatment options but very frustrated with pain.

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Kanaaz Pereira, Connect Moderator | @kanaazpereira | Jul 30, 2017

Hello @ed32, and welcome to the Digestive Health group.

There are several members talking about achalasia and reflux throughout Connect.
@barens2 @ryman @amoll157, @jimhd, @bilobabe, @fjg827 @bilobabe @margo42 @apportee @rsinger22 @ladysky @dandl48 @robbinr @danielad @rexanna @pinkmk will you join me in welcoming ed32, and adding your thoughts and experiences?

You might be interested in this very recent update from Mayo Clinic about a procedure know as POET (Peroral endoscopic tumor resection), which has been been shown to achieve very successful outcomes in the treatment of esophageal motility disorders such as Achalasia. You can read about it here:
http://mayocl.in/2mxsMJ7
@ed32, what reasons has the doctor given you about why the pain has returned? Are there certain foods in your diet that might trigger the burping?

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1 reply
ed32 | @ed32 | Aug 1, 2017
In reply to @kanaazpereira "Hello @ed32, and welcome to the Digestive Health group. There are several members talking about achalasia..." + (show)
@kanaazpereira

Hello @ed32, and welcome to the Digestive Health group.

There are several members talking about achalasia and reflux throughout Connect.
@barens2 @ryman @amoll157, @jimhd, @bilobabe, @fjg827 @bilobabe @margo42 @apportee @rsinger22 @ladysky @dandl48 @robbinr @danielad @rexanna @pinkmk will you join me in welcoming ed32, and adding your thoughts and experiences?

You might be interested in this very recent update from Mayo Clinic about a procedure know as POET (Peroral endoscopic tumor resection), which has been been shown to achieve very successful outcomes in the treatment of esophageal motility disorders such as Achalasia. You can read about it here:
http://mayocl.in/2mxsMJ7
@ed32, what reasons has the doctor given you about why the pain has returned? Are there certain foods in your diet that might trigger the burping?

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He has not said what the cause of burping and pressure is. I assume itis from acid causing gas?. I will look up the procedure you mentioned. My pain is at about a 7 now. I have tried anti reflux and anti inflammatory diets with little help. I just stay away from acidic foods. I have been getting worse and losing ahalf to one pound a day for 6 days. Called Dr. - no appointments available before my appointment on next Tuesday. Said go to er if I have to. Short of breath and difficulty swallowing. Er has proven useless in the past. Very frustrated. Taking oxyxcodone and I hate opiods. Thanks sorry for rambling

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