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ed32
@ed32

Posts: 26
Joined: Jul 12, 2017

Achalesia Chronic pain

Posted by @ed32, Jul 26, 2017

I have been dealing with achalesia for over 3 years now. Had poem and fundopliacation surgery. Pain was reduced but coming back. Have difficulty mediating because my breathing is interupted by extreme burping to let off pressure. I have had to use oxycodon on a regular basis for the last few weeks. I am trying to avoid opiods. Have done some walking meditation but having difficulty exercising. Anyone have an idea? I am not doing well. I am contiuing treatment options but very frustrated with pain.

REPLY

Hello @ed32. If you notice, I moved your discussion to the digestive health group where there are other members discussing living with achalasia.

You can find those discussions here,

https://connect.mayoclinic.org/discussion/achalasia-29e1d8/
https://connect.mayoclinic.org/discussion/achalasia-of-esophagus-with-reflux/

I would also like to introduce you to @kanaazpereira, the moderator of this group. She will be able to help Connect you with other members who may be experiencing the same things as you.

Hello @ed32, and welcome to the Digestive Health group.

There are several members talking about achalasia and reflux throughout Connect.
@barens2 @ryman @amoll157, @jimhd, @bilobabe, @fjg827 @bilobabe @margo42 @apportee @rsinger22 @ladysky @dandl48 @robbinr @danielad @rexanna @pinkmk will you join me in welcoming ed32, and adding your thoughts and experiences?

You might be interested in this very recent update from Mayo Clinic about a procedure know as POET (Peroral endoscopic tumor resection), which has been been shown to achieve very successful outcomes in the treatment of esophageal motility disorders such as Achalasia. You can read about it here:
http://mayocl.in/2mxsMJ7

@ed32, what reasons has the doctor given you about why the pain has returned? Are there certain foods in your diet that might trigger the burping?

@kanaazpereira

Hello @ed32, and welcome to the Digestive Health group.

There are several members talking about achalasia and reflux throughout Connect.
@barens2 @ryman @amoll157, @jimhd, @bilobabe, @fjg827 @bilobabe @margo42 @apportee @rsinger22 @ladysky @dandl48 @robbinr @danielad @rexanna @pinkmk will you join me in welcoming ed32, and adding your thoughts and experiences?

You might be interested in this very recent update from Mayo Clinic about a procedure know as POET (Peroral endoscopic tumor resection), which has been been shown to achieve very successful outcomes in the treatment of esophageal motility disorders such as Achalasia. You can read about it here:
http://mayocl.in/2mxsMJ7

@ed32, what reasons has the doctor given you about why the pain has returned? Are there certain foods in your diet that might trigger the burping?

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He has not said what the cause of burping and pressure is. I assume itis from acid causing gas?. I will look up the procedure you mentioned. My pain is at about a 7 now. I have tried anti reflux and anti inflammatory diets with little help. I just stay away from acidic foods. I have been getting worse and losing ahalf to one pound a day for 6 days. Called Dr. – no appointments available before my appointment on next Tuesday. Said go to er if I have to. Short of breath and difficulty swallowing. Er has proven useless in the past. Very frustrated. Taking oxyxcodone and I hate opiods. Thanks sorry for rambling

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