Achalasia

Posted by ladawki143 @ladawki143, Jul 7, 2011

Anyone else with achalasia from Mayo? I’m heading up to Rochester soon for surgery.

Liked by lee28

@tamad

Hi Teresa, I was diagnosed with achalasia about 4 years ago using manometry tests following rapid weight loss and frequent vomiting during and after meals. Given my age at the time (73), my surgeon advised against surgical procedures. Instead I have had botox injections into my LES sphincter muscle every 6 months to keep the muscle open enough for the food to go down into my stomach. I have not had any bad side effects like acid reflux after the procedures. Nonetheless, I have sporadically experienced the usual symptoms of achalasia, like chest pain and sphincter muscle pain. Fortunately, early on I discovered that drinking a few sips of cold water instantly stopped the pain. My gastro doc was not aware of this simple solution … at least in my case.

Jump to this post

I do appreciate this information, @tamad. If we have any new members with this disorder would you mind if I invite you to their conversation? Many people could use encouragement and ideas for dealing with difficult symptoms!

REPLY
@amoll157

45 year old male. Had 2 heller myotomy surgery and I need another one. My lower LES is closing again. This sickness is breaking me down slowly. Life has change from happy to pain and struggling to eat anything. Been to ER 3 times to remove steak. Than rice now bread. I’ve tried everything. Had 3 dialations

Jump to this post

I was diagnosed with complete achalasia in 2015. Prior to that, had a gastric blockage in '81, causing me to spend a month in the hospital. Everything was coming back up. Problem solved, but that constant aggravation caused my esophagus to start its slow deterioration. By 2006, I was down to 90 lbs, as my LES was closing up, and achalasia was setting in. Had the Heller myotomy, which literally saved my life, and put on 40 lbs. But I no longer have any motility. Foods need to be liquefied, mostly. I have had my esophagus dilated every two years, as it starts to close up again. At least my gag reflex is still working, when I accidentally eat too fast/too much. This pasta-loving girl is missing out on stuff so much! In private, I can eat almost anything, but need to spit it out. I can't get by without chewing something once in a while. Smoothies, soups and watery mashed potatoes are my staples now. I keep hoping for someone to perfect an esophageal transplant, but that may not happen in my lifetime. I empathize with you others who live with this condition. Bright side: I've lost pounds, and am maintaining at a good, healthy weight.
Have immersion blender, will travel!

REPLY

I am 46 and I was diagnosed with acalasia of the esophagus in 1992 (at age 22) and underwent an esophageal myotomy and Nissan fundal plication. I have seen some of the best doctors (I have been told) at northwestern in Chicago, mayo in Rochester and most recently in the twin cities. I continue to have reflux and wake up every night with pain. Strangely- the only thing that helps is eating. Most acid blockers have not helped. I have been on omeprazole with mixed results. I also am often extremely bloated by the end of the day- or wake up bloated when I have “chest” or esophagus pain at night. I may have mild gastroparesis but have no stomach pain. I am very, very concerned about the damage the reflux is doing to my esophagus. I have started going through the usual battery of tests again and have my final two in sept. before I meet with my doctor again. Anyone else experience anything like this? Thank you!

Liked by Etsy

REPLY

45 year old male. Had 2 heller myotomy surgery and I need another one. My lower LES is closing again. This sickness is breaking me down slowly. Life has change from happy to pain and struggling to eat anything. Been to ER 3 times to remove steak. Than rice now bread. I’ve tried everything. Had 3 dialations

REPLY

20 years ago I had a laproscopic heller myotomy with a wrap . Now I go 3-4 days where I cannot eat or drink again….had recent test. shows complete absence of any peristalsis and narrowing of gastric cardia of esophagus. thorasic surgeon wants to undo wrap??thoughts?? or redo myotomy? thoughts? thank you.

REPLY

Sphincter muscle pain. I found that 3 or 4 swallows of COLD water instantly stops the pain.

REPLY
Please login or register to post a reply.