Achalasia

Posted by ladawki143 @ladawki143, Jul 7, 2011

Anyone else with achalasia from Mayo? I’m heading up to Rochester soon for surgery.

Interested in more discussions like this? Go to the Digestive Health group.

@margo42

I am 46 and I was diagnosed with acalasia of the esophagus in 1992 (at age 22) and underwent an esophageal myotomy and Nissan fundal plication. I have seen some of the best doctors (I have been told) at northwestern in Chicago, mayo in Rochester and most recently in the twin cities. I continue to have reflux and wake up every night with pain. Strangely- the only thing that helps is eating. Most acid blockers have not helped. I have been on omeprazole with mixed results. I also am often extremely bloated by the end of the day- or wake up bloated when I have “chest” or esophagus pain at night. I may have mild gastroparesis but have no stomach pain. I am very, very concerned about the damage the reflux is doing to my esophagus. I have started going through the usual battery of tests again and have my final two in sept. before I meet with my doctor again. Anyone else experience anything like this? Thank you!

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I am 69 and was diagnosed with acid reflux two 1/2 years ago; severe enough to be on 40 mg twice a day of a proton inhibitor and have tried several. On the internet one day I researched this and found that acid reflux could be the result of your stomach acids are not equalized. Something as simple as a glass of lemon water or two could do the trick; the alkaline acid in lemons neutralizes the stomach acid It did for me.. I had a 16 year old dog which I had to have put down and discovered while I had her, I had severe allergies with lots of post nasal drip (which also can cause acid reflux), didn’t think it could be her. After having her put down, my allergies are not nearly as bad and all I take now for prevention is 1 20 mg. of Pepcid AC in the am and lemon water when I need it. Am completely off of those proton inhibitors. Good Luck

Elsie Crean

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@margo42

I am 46 and I was diagnosed with acalasia of the esophagus in 1992 (at age 22) and underwent an esophageal myotomy and Nissan fundal plication. I have seen some of the best doctors (I have been told) at northwestern in Chicago, mayo in Rochester and most recently in the twin cities. I continue to have reflux and wake up every night with pain. Strangely- the only thing that helps is eating. Most acid blockers have not helped. I have been on omeprazole with mixed results. I also am often extremely bloated by the end of the day- or wake up bloated when I have “chest” or esophagus pain at night. I may have mild gastroparesis but have no stomach pain. I am very, very concerned about the damage the reflux is doing to my esophagus. I have started going through the usual battery of tests again and have my final two in sept. before I meet with my doctor again. Anyone else experience anything like this? Thank you!

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Elsie, Glad to hear your reflux has improved. One suggestion though is that if you haven’t had a recent endoscopy is to have one. The reason being is that Barrett’s esophagus, and Dysplasia which develops in Barretts from having reflux is painless and can continue to get worse while you no longer have reflux, developing into cancer without even having any symptoms. I know of a 35 year old man here in town who had reflux for a few years and then it stopped with a change of his lifestyle and is now battling for his life with stage 4 cancer in his esophagus which has now spread to his liver.

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@etsy

I am 69 and was diagnosed with acid reflux two 1/2 years ago; severe enough to be on 40 mg twice a day of a proton inhibitor and have tried several. On the internet one day I researched this and found that acid reflux could be the result of your stomach acids are not equalized. Something as simple as a glass of lemon water or two could do the trick; the alkaline acid in lemons neutralizes the stomach acid It did for me.. I had a 16 year old dog which I had to have put down and discovered while I had her, I had severe allergies with lots of post nasal drip (which also can cause acid reflux), didn’t think it could be her. After having her put down, my allergies are not nearly as bad and all I take now for prevention is 1 20 mg. of Pepcid AC in the am and lemon water when I need it. Am completely off of those proton inhibitors. Good Luck

Elsie Crean

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Thanks Elsie. I have tried apple cider vinegar which I think is the same idea but not consistently. I think I will try a nutritionist to get tested for food sensitivities. I’ve also tried this in the past without success but need to keep trying different things…

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@margo42

I am 46 and I was diagnosed with acalasia of the esophagus in 1992 (at age 22) and underwent an esophageal myotomy and Nissan fundal plication. I have seen some of the best doctors (I have been told) at northwestern in Chicago, mayo in Rochester and most recently in the twin cities. I continue to have reflux and wake up every night with pain. Strangely- the only thing that helps is eating. Most acid blockers have not helped. I have been on omeprazole with mixed results. I also am often extremely bloated by the end of the day- or wake up bloated when I have “chest” or esophagus pain at night. I may have mild gastroparesis but have no stomach pain. I am very, very concerned about the damage the reflux is doing to my esophagus. I have started going through the usual battery of tests again and have my final two in sept. before I meet with my doctor again. Anyone else experience anything like this? Thank you!

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I also read on the internet that apple cider vinegar is very good as well but can have a few side effects eventually. Unfortunately, you do have to be consistent and follow a good diet as well. You know nothing spicey. Its a tough diet to follow. Good Luck

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@margo42

I am 46 and I was diagnosed with acalasia of the esophagus in 1992 (at age 22) and underwent an esophageal myotomy and Nissan fundal plication. I have seen some of the best doctors (I have been told) at northwestern in Chicago, mayo in Rochester and most recently in the twin cities. I continue to have reflux and wake up every night with pain. Strangely- the only thing that helps is eating. Most acid blockers have not helped. I have been on omeprazole with mixed results. I also am often extremely bloated by the end of the day- or wake up bloated when I have “chest” or esophagus pain at night. I may have mild gastroparesis but have no stomach pain. I am very, very concerned about the damage the reflux is doing to my esophagus. I have started going through the usual battery of tests again and have my final two in sept. before I meet with my doctor again. Anyone else experience anything like this? Thank you!

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I also wanted to thank dandi 48. I had a endoscopy last year and of course had it done in the ENT’s office (didn’t like that) and didn’t care for him either. Everything was fine then. This year I just had a colonoscopy, everything fine there, but the doctor was a gastro doctor and said he would take care of me for the acid reflux so am going to make an appointment with him and am going to have him do the endoscopy. Thanks

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@margo42

I am 46 and I was diagnosed with acalasia of the esophagus in 1992 (at age 22) and underwent an esophageal myotomy and Nissan fundal plication. I have seen some of the best doctors (I have been told) at northwestern in Chicago, mayo in Rochester and most recently in the twin cities. I continue to have reflux and wake up every night with pain. Strangely- the only thing that helps is eating. Most acid blockers have not helped. I have been on omeprazole with mixed results. I also am often extremely bloated by the end of the day- or wake up bloated when I have “chest” or esophagus pain at night. I may have mild gastroparesis but have no stomach pain. I am very, very concerned about the damage the reflux is doing to my esophagus. I have started going through the usual battery of tests again and have my final two in sept. before I meet with my doctor again. Anyone else experience anything like this? Thank you!

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Hi @etsy, my alcalasia has gotten worse. I am afraid it could turn into esophagus cancer. I am schedule for a colonoscopy this November, I will discuss with my GI doctor about. Endoscopy also. Thanks for the replay.

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@apportee

Hi @etsy, my alcalasia has gotten worse. I am afraid it could turn into esophagus cancer. I am schedule for a colonoscopy this November, I will discuss with my GI doctor about. Endoscopy also. Thanks for the replay.

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I have this also and losing my voice a way to control reflux is lemon water it brings the acid down lemon is high pH alkaline stops the acid erosion my brother RIP and sister have had esophagus reflux also. When I sip lemon water my voice gets stronger squeeze a half of lemon in a glass or bottle of water! Don’t forget to take pits out! I might have read it on here?

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@etsy

I am 69 and was diagnosed with acid reflux two 1/2 years ago; severe enough to be on 40 mg twice a day of a proton inhibitor and have tried several. On the internet one day I researched this and found that acid reflux could be the result of your stomach acids are not equalized. Something as simple as a glass of lemon water or two could do the trick; the alkaline acid in lemons neutralizes the stomach acid It did for me.. I had a 16 year old dog which I had to have put down and discovered while I had her, I had severe allergies with lots of post nasal drip (which also can cause acid reflux), didn’t think it could be her. After having her put down, my allergies are not nearly as bad and all I take now for prevention is 1 20 mg. of Pepcid AC in the am and lemon water when I need it. Am completely off of those proton inhibitors. Good Luck

Elsie Crean

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Your statement — “the alkaline acid in lemons neutralizes the stomach acid” — has caught my attention, for it defeats science. If it works, are there explainable reasons behind it? Just would like to know since I too have an imbalanced pH.

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I am 46 and I was diagnosed with acalasia of the esophagus in 1992 (at age 22) and underwent an esophageal myotomy and Nissan fundal plication. I have seen some of the best doctors (I have been told) at northwestern in Chicago, mayo in Rochester and most recently in the twin cities. I continue to have reflux and wake up every night with pain. Strangely- the only thing that helps is eating. Most acid blockers have not helped. I have been on omeprazole with mixed results. I also am often extremely bloated by the end of the day- or wake up bloated when I have “chest” or esophagus pain at night. I may have mild gastroparesis but have no stomach pain. I am very, very concerned about the damage the reflux is doing to my esophagus. I have started going through the usual battery of tests again and have my final two in sept. before I meet with my doctor again. Anyone else experience anything like this? Thank you!

REPLY
@amoll157

45 year old male. Had 2 heller myotomy surgery and I need another one. My lower LES is closing again. This sickness is breaking me down slowly. Life has change from happy to pain and struggling to eat anything. Been to ER 3 times to remove steak. Than rice now bread. I’ve tried everything. Had 3 dialations

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Hello @amoll157,

I’m sorry you are going through so much, but I’m so glad you’ve found the Connect community. Here is some detailed information about Achalasia, and treatment from Mayo Clinic: http://mayocl.in/2kVYpyf

You may also be interested in connecting with other members in this discussion:
Achalasia of esophagus with reflux: http://mayocl.in/2cfhyny

I’m also tagging past members @dhuffman @ladawki143 @lee28 @sfrigon @klsxoxo @tammyjean @tgirl, with the hope they return with more insight for you.

@amoll157, what foods can you eat comfortably? Has your doctor ever suggested a fundoplication or (according to Mayo Clinic), a newer procedure, called peroral endoscopic myotomy (POEM)?

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@kanaazpereira

Hello @amoll157,

I’m sorry you are going through so much, but I’m so glad you’ve found the Connect community. Here is some detailed information about Achalasia, and treatment from Mayo Clinic: http://mayocl.in/2kVYpyf

You may also be interested in connecting with other members in this discussion:
Achalasia of esophagus with reflux: http://mayocl.in/2cfhyny

I’m also tagging past members @dhuffman @ladawki143 @lee28 @sfrigon @klsxoxo @tammyjean @tgirl, with the hope they return with more insight for you.

@amoll157, what foods can you eat comfortably? Has your doctor ever suggested a fundoplication or (according to Mayo Clinic), a newer procedure, called peroral endoscopic myotomy (POEM)?

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Wow thank you so much for responding. I was beginning to feel all alone in this misery.  Yes my first procedure was myotomy with partial fundoication.  (However you spell it). That was horrible. I was burping every 20 min for over a year. Than I had 3 separate dialations. Than surgery 2 was heller myotomy and remove the partial fundo. Now I had 3 endoscopy to remove food log in my LOWER LES. dr said I need another heller myotomy. You mention a new procedure. I’m definitely going to look into it.  They said I need surgery ASAP    

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@kanaazpereira

Hello @amoll157,

I’m sorry you are going through so much, but I’m so glad you’ve found the Connect community. Here is some detailed information about Achalasia, and treatment from Mayo Clinic: http://mayocl.in/2kVYpyf

You may also be interested in connecting with other members in this discussion:
Achalasia of esophagus with reflux: http://mayocl.in/2cfhyny

I’m also tagging past members @dhuffman @ladawki143 @lee28 @sfrigon @klsxoxo @tammyjean @tgirl, with the hope they return with more insight for you.

@amoll157, what foods can you eat comfortably? Has your doctor ever suggested a fundoplication or (according to Mayo Clinic), a newer procedure, called peroral endoscopic myotomy (POEM)?

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I went through the same struggle. Everything deteriorated until I could not risk eating without the possibility of aspiration pneumonia. Had a
PEG tube ( feeding tube ) surgically implanted
last week at the Mayo Rochester. So far things are going OK. GOOD LUCK

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