Achalasia type 111

Posted by d13 @d13, Sep 10 6:53am

I have recently been diagnosed with Achalasia type 111 and epigastric hernia; although the small hiatal hernia has been ruled out as far as my diagnosis with achalasia type 111 is concerned. I will have my first consultation next Wednesday with the surgeon who will be performing the (POEM) procedure on me. My referral from a general surgeon marked it as urgent, but I am still having to wait to be seen. I have lost and am losing alot of weight over the last couple of months. My symptoms with this are a slight burning sensation in midsection and the rib cage area and now seems to be going farther up. I'm eating less and less each day. The symptoms come on more when eating. The warming sensation also affects my head. Lately they feel like when I was going through menopause, but they don't last but for maybe minute at a time. Come and go during the day. I'm jittery in the .morning hours it seems. I'm mostly worried about my weight loss. Has or is anyone been diagnosed with this achalasia type 111? Can you tell me about how far advanced you are. I'm hoping that after next Wednesdays appointment, I'll be able to get the surgery procedure done soon afterwards. Even with all of the covid patients taking up the hospital beds.

@d13 I thought you might find the following discussions about achalasia helpful:

– Achalasia: https://connect.mayoclinic.org/discussion/achalasia/
– Esophagus issues: https://connect.mayoclinic.org/discussion/esophagus-issues/
– POEM Surgery for Achalasia: https://connect.mayoclinic.org/discussion/two-months-after-poem-surgery-for-achalasia/
– Achalasia Chronic pain: https://connect.mayoclinic.org/discussion/achalesia-chronic-pain/

In addition, I'd like to bring in members such as @fourof5zs @ryman @hopeful33250 and @dandl48 to see if they may be able to support you as you get ready for your upcoming appointment.

What information are you most seeking at this time that members may be able to share with you?

REPLY

Hello @d13,

From the symptoms you have mentioned I'm sure that you are looking to get some relief. This sounds very uncomfortable and the weight loss is difficult.

While I've never had your particular diagnosis, I have had a lot of upper digestive issues, including surgery for carcinoid tumors in the duodenal bulb. If you read the discussion that Amanda, @amandajro, mentioned, POEM Surgery for Achalasia: https://connect.mayoclinic.org/discussion/two-months-after-poem-surgery-for-achalasia/ you will find several members of Connect who speak quite highly about their surgery and the good results.

Was this hard to diagnose? What tests were done to reach the diagnosis of Achalasia type 111?

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I first had the upper GI endoscopy, where as a small hiatal hernia was discovered, but was told eventually that it had nothing to do with the symptoms I was having. The endoscopy test was done on July 14th-21. I then got in to see a gastroenterologist in August 26th to get the esophageal manometry with impedance 24 hour PH test. Now just getting to see a surgeon that specializes in the achalasia type 111 this September 15th. I've read what people have said on here and now know what to expect. A bit scary, but I am so done with these symptoms. I especially don't like that for 3 days before procedure, I can only have clear liquids, and I believe for 3 days after. And there is going to be some pain for a few days after. Someone wrote that you have to take a pink liquid for the pain; but that it really helps. And also not looking forward to spending even one night in the hospital, especially in today's world.

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@amandajro

@d13 I thought you might find the following discussions about achalasia helpful:

– Achalasia: https://connect.mayoclinic.org/discussion/achalasia/
– Esophagus issues: https://connect.mayoclinic.org/discussion/esophagus-issues/
– POEM Surgery for Achalasia: https://connect.mayoclinic.org/discussion/two-months-after-poem-surgery-for-achalasia/
– Achalasia Chronic pain: https://connect.mayoclinic.org/discussion/achalesia-chronic-pain/

In addition, I'd like to bring in members such as @fourof5zs @ryman @hopeful33250 and @dandl48 to see if they may be able to support you as you get ready for your upcoming appointment.

What information are you most seeking at this time that members may be able to share with you?

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Things I will need to do before surgery and post-OP recovery time and what to expect after; such as for pain and what I can eat.

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