Abuse of Opioids takes away from all the good it can do

Posted by rayjay535353 @rayjay535353, Sep 18, 2022

Hi, I'm Jaime- 68 year old male having chronic pain for 30 years.
I've had 14 sports related surgeries that began at age 18 and have just gone through 2 Posterior cervical decompression with multi level fusions during the past 18 months. I have been to numerous pain specialists, tried every supplement advertised, have every gadget that is offered online, and have had no less than 25 cortisone shots, knee replacement, epidurals etc. Throughout the 30 years, I have found that Opioids are the only thing that has allowed me a quality of life. Side effects? Show me a medication that doesn't have any. I had to be extremely disciplined to only take as prescribed. If a pain doctor doesn't offer opioids, they should find another profession. I take Hydrocodone 10/325 4 times a day max and less if not needed, Nobody seems to defend the use of opioids, but if you don't abuse it, it could be a life saver, not a killer

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I have at least 30 allergies to meds. Oxycodone 5 MG doesn't quite do it but on days when entire body is in a snit fit it helps. I had to beg pain management doc for them. He offered 120 for the year. I filled only 74 of that. I just wrote and asked for the 46 I haven't used since starting last April. If he doesn't do that then I will ask to have him give me a pain med off my allergy list and see if it works. Recently my PCP gave me a med on my bad reaction list and taking only 1/2 a tablet I ended up with laryngeal edema. That moved from bad reaction to anaphylaxis. Time will tell.

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You are 100% right! What ticks me off is because other people can't or won't take personal responsibility, those of use in real pain have to jump through so many hoops to get some type of relief.
I lock my pain meds up because I still have teenagers in the house, not because I think they will take some, but because I would rather be safe than sorry.

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@susanhale28

I really relate to what you are going through, Jamie. I have had 13 sports and dance related surgeries that all started in 1973. And I need at least 5 more because I am sick of surgeries and often the pain medication doesn’t work after the surgeries and it is HELL!! I have a connective tissue disease called Ehlers Danlos and it affects everything like your veins, skin, arteries, blood vessels, colon, heart, etc. I started throwing clots 6 months ago and they lodged right near my heart. But I had symptoms and they caught it before I croaked. I guess There is big things they have to keep an eye on like changes in the aorta ( John Ritter died in his 40’s of a ruptured aorta.. he had ED) and I recently had a ruptured colon and had to have a colostomy.. Yuk… and that bag for 5 months.. Almost Died.. was in the ICU for 8 days. Hospital for a month. Any surgery that involves soft tissue… like the rotator cuff surgery that I really need because my shoulder dislocates almost monthly.. has been for at least 10 years and after going to the ER in the beginning for them to fix it, I have become an expert at popping it back in. Takes hours of pain.. maneuvering.. praying and yelling!! But most of the time I avoid the ER.. They have told me that I only have a 50 percent chance it will take!! I know how painful that surgery is because I have had it on my right shoulder but that one didn’t dislocate. 🤷‍♀️I am sick of having surgery. With this disease you just don’t know if it’s going to work. They diagnosed me after a surgery on my foot, a simple bunionectomy turned my whole foot all splayed out and gross.
I have been on some form of pain medication on and off LOL, I am SO SORRY for the rambling NOVELA you had to read.. 🤦‍♀️ .. Um since high school.. I was always really achy.. living on my heating pad after cheerleading practice. My mom used to rub DEEP HEAT cream on my back before school in first grade and kids bullied me cause I smelled like menthol!! I didn’t care.. Helped my back pain. I guess it’s genetic Born with it.. my mom was diagnosed with it when I was. I am 67 now and I have always been very “bendy and klutzy “. 2 sure signs 😂My opioid needs we’re off and on but when I was having SO many surgeries back to back and eventually pain became chronic I began pretty much taking them daily!! 10/325 I am allowed to take 6 a day but on an average day 4-5. The judgment you get from family, is terrible.. at least my siblings.. who because of that I don’t hang with. People who don’t understand living with chronic pain and have no empathy are just hard for me. I have been to pain Docs and got 2 different treatments!! Mind you that I have had 2 spinal fusion’s L-3-4toL-5-S-1 I think. One pain doctor just wanted to give me epidurals all the time and I am allergic to Cortisone. He also did all these nerve tests on my spine and wanted to give me morphine and Norco as well!! There were always a ton of people in the waiting room!! I live in a smaller town. Then I read in the paper they were shut down for pushing too many meaningless tests on older people.
So I found another “pain” Dr and as soon as I walked in he told me that if I was looking for opioids for a solution for my pain forget about!! He only orders epidurals and PT. My nurse practitioner that I see monthly because I check in for clinical depression, fibromyalgia, Hashimotos Thyroid disease and others that requires meds said that SHE would take over my pain management and muscle relaxer medication, but she told me she was nervous about it because the DEA is breathing down DR’s throats because it got out of hand in the past and Drs are losing their licenses over minor precautions. My Dr who I loved had his license suspended probably 10 years ago because a family had a son who he treated for pain from a broken bone and the kid got addicted and got some off the street and OD’d. Norco.
My stepson had addiction issues since he was a freshman. I caught him stealing my Norco once and had to buy a lock box. I got divorced from his dad and his alcoholic and mild issues with pills I guess finally killed him. A year ago this last January he bought a “Norco” from someone selling on the street or a friend, to party with his best friend In Arizona who he had not seen in a couple years. Guess it was laced with Fentanyl, and his best friends wife found him face down on the kitchen floor after they had come home from the Casino… He was 29. His father, and sister and grandparents are devastated. I am as well since I raised him ( half custody) since he was 3 until he was 18. My 2 kids are broken. They keep saying saying it’s an OPIOID crisis and all these people are dying of what us people with chronic pain could NOT function!! It is a fentanyl crisis! And the government needs to open more facilities for helping people. Rehabs. I have run my mouth way too LONG! I hope I have helped a shred!! I DO know what you all are going through.. and I feel so bad for you and my empathy is here for you. Hugs

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It's not an opioid crisis for the people who are compliant. It's a DRUG crisis of any kind for people who look for these drugs only as a way to get high. What needs to be addressed is the underlying issue that feeds that need to begin with. I know a lot of people do a lot of different things in order to anesthetize. Just what kind of "pain" are they trying to kill? If they must talk to a therapist, psychiatrist in order to find an answer, then that is what should be done. We are not responsible for the people who illegally acquire these medications knowing there is a strong possibility it might be the last thing they do. People that do, make it harder for people that adhere to the specifications and orders set by their doctor. It's not fair and contrary to what's reported, it's not our problem. It's something they and their family need to deal with.

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I take the same strength hydrocodone. I see my pain doctor every 2 months. He phones in 2 scripts. They fill one and put the other on file. When I need it refilled, I'll call. I always have to move my appt out by at least 2 weeks because I have too many pills left when it comes time for my next appt. I take 1 every 7 hours. I used to do every 6 hours and I tried the 7 and it seems to be working. There are a few instances where I'll have to take them every 4 hours for a couple days, depending on what I did to aggravate my back. I have been taking them for 20 years at least. They work just as well as they did in the beginning. Just because a script says take every so many hours doesn't mean you have to. I also do a urine test every time I go. It's not to look only for illegal drugs or medication you shouldn't be taking, it's to make sure the level of pain medication in your system reflects your usage. That way, they know whether you are selling them, using too many or taking them as prescribed. If I told my doctor I hurt so bad I had to take them every 4 hours the whole month and the level in my system didn't reflect that, he may just drop me as his patient because he would assume I was selling them and not taking them. Same if I said I take them every 6 hours but the amount in my system was too high for that, he'd know I was lying. By being compliant and truthful, people who really have a need for them don't need to worry.

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@krisjb1

The war on drugs has been a complete failure and will continue to fail as huge amounts of fentanyl comes across our border. Why should those of us who need them have to be denied pain killers because of the federal government's lack of control over illegal drugs and super control over legal ones? People step out into the streets with bullhorns and loud chants to protest all kinds of things that often seem nonsensical. Would it be illogical to protest FOR prescription pain killers?

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Typical government trying to regulate. What happens with this particular endeavor, which was sold as War on Drugs, only punishes the people who are seeking legimate ways to treat their pain. A study showed that the folks obtaining the medication legally are less likely to abuse the medication. Meanwhile others are shooting up on the streets and littering the street with syringes.

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@krisjb1

The war on drugs has been a complete failure and will continue to fail as huge amounts of fentanyl comes across our border. Why should those of us who need them have to be denied pain killers because of the federal government's lack of control over illegal drugs and super control over legal ones? People step out into the streets with bullhorns and loud chants to protest all kinds of things that often seem nonsensical. Would it be illogical to protest FOR prescription pain killers?

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Well put. Watching the numerous media stories about the "opiod crisis" is so upsetting. It's never about us, those in need. My internal medicine doctor and orthopedic surgeon both refuse to prescribe me anything for pain. My primary care physician argues with me about how well the hydrocodone help. He says they don't do anything for your pain after 2 weeks! Whatever studies came out to support the forces withdrawl of what I'm sure is millions of paties are bogus. Ibruprofin doesn't do it. Since I haven't been able to get anything for my failed TKR revision surgery, I cannot walk without crippling pain. My leg has began to atrophy. All we can do is hope. If I thought a protest would help here in rural Wyoming, I'd do it.

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@hrd

Well put. Watching the numerous media stories about the "opiod crisis" is so upsetting. It's never about us, those in need. My internal medicine doctor and orthopedic surgeon both refuse to prescribe me anything for pain. My primary care physician argues with me about how well the hydrocodone help. He says they don't do anything for your pain after 2 weeks! Whatever studies came out to support the forces withdrawl of what I'm sure is millions of paties are bogus. Ibruprofin doesn't do it. Since I haven't been able to get anything for my failed TKR revision surgery, I cannot walk without crippling pain. My leg has began to atrophy. All we can do is hope. If I thought a protest would help here in rural Wyoming, I'd do it.

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If only we had the power to change minds, but their minds are made up and there is really nothing we can do about it. Your dr.'s are not there for you are they? Their surgical intervention was a failure and now they refuse to give you relief from pain. Stop visiting their offices and paying them for nothing. At least you can save a little money if nothing else. Sometimes it is easier said than done but maybe there are measures you can take to help yourself. Do a lot of searching on the internet. You may find something. Even a nugget of information is better than "Take an Ibuprophen." Sometimes I use DMSO and it helps a bit. Maybe it will help you.
If your doc will give you 2 weeks worth of hydrocodone take it and try it out. If it works for you then at least you have that knowledge. Once you know it helps you can be the dr.'s biggest pain until he or she relents and prescribes another 2 weeks worth. If we don't keep advocating for ourselves we are forgotten.

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@hrd

Well put. Watching the numerous media stories about the "opiod crisis" is so upsetting. It's never about us, those in need. My internal medicine doctor and orthopedic surgeon both refuse to prescribe me anything for pain. My primary care physician argues with me about how well the hydrocodone help. He says they don't do anything for your pain after 2 weeks! Whatever studies came out to support the forces withdrawl of what I'm sure is millions of paties are bogus. Ibruprofin doesn't do it. Since I haven't been able to get anything for my failed TKR revision surgery, I cannot walk without crippling pain. My leg has began to atrophy. All we can do is hope. If I thought a protest would help here in rural Wyoming, I'd do it.

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Can you find a pain management doctor? I see pain management and rehabilitation doctor.

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@carol1024

Can you find a pain management doctor? I see pain management and rehabilitation doctor.

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I have an upcoming appointment. I have hope! Thanks:)

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I have been weaning off Fentanyl so that I can go back on hydrocodone. But most physicians don’t want to prescribe pain medication. I have multiple sclerosis (secondary progressive) with spine damage/pain, sever muscle spasms and in places where it causes other pain problems, like piriformis syndrome (piriformis muscle under the pelvic disturbs the sciatic nerve, in my case for both legs/feet. I take muscle relaxants, but I am suffer rigidity. It was my neurologist and physical medicine/rehabilitative physicians who started the opioids and introduced me to fentanyl. I have to come off it because Medicare D doesn’t approve of its use. I am at the mercy of my prescription company to get formulary exceptions to get fentanyl until I am off it. I am in pain every day mostly 5-8 on a scale 1-10. And i do get days when it is 10+. I have used Botox injections. My neurologist is not fond of baclofen pumps for relieving muscle spasms. I have paraspinal muscle spasms, in the hands, forearms and places you would never imagine. I tried Botox and too much weakens to the point you need PT or OT. I have had cortisone/nerve blocks. Plenty of yoga, PT/OT. With aging it gets harder. The opioid crisis is serious but for people who need pain medicine it is terrible situation. In my state you must see the the physician once a month to get your prescription which is faxed to my retail pharmacy. We make small talk each month. I paying to see a physician every month and periodically give a urinalysis for drug testing. I tried even marijuana approved for MS in my state, but one cannot guarantee the strength or type one will received at a dispensary. Neurologist is afraid it will effect cognitive skills, since my disease already impacts cognitive skills (memory) and personality. I have had this disease for almost 37 years and probably longer. That is when it was diagnosed. It is frustrating at times. I will continue massage therapy and maybe look into accupuncture which is not always covered by insurance, depending on facility, physician and number of sessions. I feel like a guinea pig trying various treatment plans and physicians. And i am the one who has to deal with pain.

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