Questions about Infiltrative Astrocytoma: Prognosis? Treatments?

Posted by ginette55 @ginette55, Jul 10, 2020

Is it something new for 14 years old kid?

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Hi ginette55, did your grandson get the diagnosis of infiltrative astrocytoma?
Here's more information https://rarediseases.org/rare-diseases/astrocytoma/

Do you know the grade of his astrocytoma? What treatments has he had?

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NO.it is a recurrence after 6 years.

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His first cancer was a medulloblastoma for which he did 6 weeks of radiation and 18 months of chemo. This time, he was only able to do 2 weeks of radiation before hitting his lifetime cap, so that's all he's been able to do.

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@ginette55

His first cancer was a medulloblastoma for which he did 6 weeks of radiation and 18 months of chemo. This time, he was only able to do 2 weeks of radiation before hitting his lifetime cap, so that's all he's been able to do.

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@ginette55 What options are they suggesting for your grandson?

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@colleenyoung

Hi ginette55, did your grandson get the diagnosis of infiltrative astrocytoma?
Here's more information https://rarediseases.org/rare-diseases/astrocytoma/

Do you know the grade of his astrocytoma? What treatments has he had?

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GRADE 2

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He was treated in Mexico. he was fine for few months. Now they found inflammation in the spine cord. We have appointment with clinic Anderson August 3rd

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Hi there. My husband has been diagnosed with a diffuse astrocytoma in his right temporal lobe. They have not given information on size or confirmed the grade yet but have noted it covers most of the right temporal lobe. They have said that it is inoperable as it is diffuse and would cause too much disability. They have also said that proton would not be suitable and are suggesting radiotherapy. Does anyone have any information on this. Thank you

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@leri

Hi there. My husband has been diagnosed with a diffuse astrocytoma in his right temporal lobe. They have not given information on size or confirmed the grade yet but have noted it covers most of the right temporal lobe. They have said that it is inoperable as it is diffuse and would cause too much disability. They have also said that proton would not be suitable and are suggesting radiotherapy. Does anyone have any information on this. Thank you

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Hello @leri and welcome to Mayo Clinic Connect. I am sorry to hear of your husband's diagnosis. I imagine the lack of information on the size and grade has you reeling a bit until you know more details. It is good you're seeking support.

You will notice that I have moved your post into an existing discussion on this topic so that you may connect with @ginette55 who started this discussion in hopes that the pair of you can help one another.

In the meantime, here is some information with regard to treatment options:
– Astrocytoma:
https://www.mayoclinic.org/diseases-conditions/astrocytoma/cdc-20350132
When do you expect to learn more from the oncologist?

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Thank you. We meet with the oncologist this week so maybe we will have more info then. Thank you

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@leri

Thank you. We meet with the oncologist this week so maybe we will have more info then. Thank you

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It may be that the treatments my daughter had would be appropriate, particularly if the tumour has the BRAF mutation. If you click on my name I think it will show you these. Do feel free to ask me questions direct too if that helps. All the best, David.

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