7 weeks after RARP, feeling frustrated, depressed, waiting to improve
I’m 56 years old and was diagnosed with PC, Gleason 9, so the RARP seemed my only option. The nerves could not be spared on one side, but I’m told they were able to spare 90% on the other. My PSA is thankfully undetectable at this point, and I’m grateful for that, however I was not mentally prepared for the after effects.
I’m 7 weeks into recovery and have almost no bladder control when standing, a small amount when sitting, and some amount when laying down or sleeping, however I continue to drip undetected at all times. I’m also dealing with total ED, but I guess it seems too soon to expect that. I recently started PT, but I’m not seeing any weekly improvement in my overall progress.
Is this what everyone has gone through? My wife is being supportive, but the situation is so depressing. How is everyone else coping with this?
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@jimgaudette
Thanks
@paulbwatertownct Perhaps talk to your urologist about this. Good to know there are options if the incontinence doesn't fully resolve. It was a simple, fairly low risk surgery with general anesthesia. No post-surgical complications for me. I’ve attached a description of the male sling the was provided to me. Best wishes.
Male Sling (Male-Sling.pdf)
@heavyphil
I completely agree. Any surgery like PC (which is major) should never be promoted as minor or that recovery will not have issues.
I did not have RP but read from those that did like you. I think you hit the nail on the head trying to explain what to expect beyond some of the sugar coding of having RP.
I am on another forum on MCC about ICD/Pacemakers. Some are shocked at what the feel after surgery. I am shocked they were not informed of how the would feel and what to expect as side affects. I try there to give my experience with the surgeries (I have had it 3 times now) and what I experienced personally and what my EP (Electrophysilogist) said were side effects, what to expect, recovery, and if had this or that contact them immediately.
Your post was informative to those who are going to have RP as well as other surgeries like your wife's. I once had a doctor tell me a surgery was minor. After a tube in my lung, 5 days in hospitial recovering, catherter in my penis, I confronted the doctor (this was over 20 years ago) saying why did you say to me this was minor surgery. Answer: "I was talking about the minor surgetical technique of the surgeon. Wow! Would have been nice to be more clear.
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2 Reactions@melvinw
Thanks very much for the info and advice
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