Any other females here with bladder cancer in their 50s?

Posted by talltxlady @talltxlady, Apr 25, 2023

Saying hello as a new member. Sometimes it's difficult to find info for females with bladder cancer, and sometimes it would be nice to have others to connect with.
Start BCG again in May. Have been off of it since December. It has been so nice not to have to think about any of that for a while. Starting to get nervous though, with bcg beginning again very soon. Praying the cancer stays away.
I think I'm the youngest one where I'm being treated. Any other females here with bladder cancer in their 50's?

Interested in more discussions like this? Go to the Bladder Cancer Support Group.

natalex17 | @natalex17 | Apr 26 12:10pm

Yes, I'm 55yo female. I have had the non-worrisome papillary carcinoma type since I was 28. In 2019, it became aggressive. I have had countless TURBTs. I went Keto in 2019, Cancer was clear for 6 years. About 1-2 years ago I relaxed on the Keto and now its back. Just had another TURBT and back on keto. Has your penetrated the bladder wall?

jcandersen9415 | @jcandersen9415 | Apr 25 6:46am

Hello! I’m 59 and was diagnosed last year. I’m trying to understand it all. My Dr isn’t very communicative. He’s matter of fact, this is what needs to be done and then I move on until my next appointment. Ive had two turbts and had the 6 weeks of weekly chemo treatments, then my next visit, I was clear. But the next 3 month check, the tumors were back. They described it like weeds in a garden. I’m trying not to freak out and get ahead of myself but am trying to read what I can about a healthy lifestyle.

annepark | @annepark | Apr 20 10:17am

In reply to @colleenyoung "@annepark, how did the cystoscopy go? How are you doing?" + (show)

Hi Colleen . The Cystoscopy lasted longer than usual. Around one hour . Surgeon said thinning and thickening of bladder wall. Another tumor was found and I believe he mentioned a possible hematological tumor . I was groggy . Now waiting on pathology report . Thank you so much for asking . How are you ?

Colleen Young, Connect Director | @colleenyoung | Apr 19 12:54pm

In reply to @annepark "Hi . I’m in my late 50’s . Diagnosed T1 G3 NMIBC. Completed 6 BCG instillations..." + (show)

@annepark, how did the cystoscopy go? How are you doing?

tanya | @hmmm | Apr 13 11:55am

In reply to @jowilliams1 "Hi, Tanya. I'm glad things are going well. As you progress and build that floor, remember..." + (show)

Thank you .. yes you definitely need to have patience for this. I saw some machines that you can buy online but am skeptical 🤨🙄🙂.. I mentioned machines to my physiotherapist and she didn't say anything about having one that we could try if needed. Hmm🤔

jowilliams1 | @jowilliams1 | Apr 13 11:26am

In reply to @annepark "Hi . I’m in my late 50’s . Diagnosed T1 G3 NMIBC. Completed 6 BCG instillations..." + (show)

Welcome, Lesley . I'm 55 and was diagnosed in June 2024 with stage 2 MIBC. I wish I didn't have to welcome you to this "club" but stay optimistic. There are so many medical advances now and with the right doctors, you'll get through it. All my best to you.

jowilliams1 | @jowilliams1 | Apr 13 11:20am

In reply to @hmmm "Not yet, I have a follow up appointment on May 14th." + (show)

Hi, Tanya. I'm glad things are going well. As you progress and build that floor, remember it is helping even if you can't immediately so progress. Once you give it some time, if you still aren't seeing progress after a few months there is also a floor stimulation device that a doctor can use. It doesn't work for everyone but does help some, according to my surgeon. It helps to kind of "wake up" those muscles if necessary. Just thought I would share that! Good luck! Hope you're feeling well and getting clear scans!

annepark | @annepark | Apr 12 3:37pm

Hi . I’m in my late 50’s . Diagnosed T1 G3 NMIBC. Completed 6 BCG instillations almost 7 weeks ago. Follow up Cystoscopy next week . Also, looking to hear from other ladies of a similar age with diagnosis of bladder cancer .

Thanks

Lesley