Exactly - studies are few and far between. Just had long talk with a gerontologist friend who is also a G8 PC survivor (had surgery). He said he could find no data about G8 and proton. He also thought my husband would need additional treatment for enlarged prostate. I have contacted two proton centers to ask about the Lupron but the (limited) info I've found on the net says ADT is standard for G8.
Update: Heard back from one proton center. They would require Lupron and would not be able to treat the enlarged prostate. So it looks like RP is the only option. My husband is ok with this decision and it's a relief to be able to stop my all-night research.
My husband, 71, G8, PSA 8, PSMA PET no spread, has planned surgery for September. He ruled out radiation options because of required 18-24mos ADT. But after extensive reading about less invasive Proton and Cyberknife procedures, I have nagging doubts.
If you chose one of these options w/ G8, did you also need hormone therapy and if so, for how long?
My husband, 71, G8, PSA 8, PSMA PET no spread, has planned surgery for September. He ruled out radiation options because of required 18-24mos ADT. But after extensive reading about less invasive Proton and Cyberknife procedures, I have nagging doubts.
If you chose one of these options w/ G8, did you also need hormone therapy and if so, for how long?
Update: Heard back from one proton center. They would require Lupron and would not be able to treat the enlarged prostate. So it looks like RP is the only option. My husband is ok with this decision and it's a relief to be able to stop my all-night research.
My husband, 71, G8, PSA 8, PSMA PET no spread, has planned surgery for September. He ruled out radiation options because of required 18-24mos ADT. But after extensive reading about less invasive Proton and Cyberknife procedures, I have nagging doubts.
If you chose one of these options w/ G8, did you also need hormone therapy and if so, for how long?
Hi I’m 64 and had radiation therapy for 28 days.. after that I went back for my PSA TEST and it elevated by 26 points.. After I found out about this my Doctor wanted me to start hormonal therapy using Eligard… I did extensive research on this drug and all the other ones that are used for hormonal therapy and I would suggest to you is don’t even go there… If I had to do it all over again I would just do active surveillance period!!!! All these drugs are far to dangerous to take specially for someone with heart trouble… See the attached video
Hi I’m 64 and had radiation therapy for 28 days.. after that I went back for my PSA TEST and it elevated by 26 points.. After I found out about this my Doctor wanted me to start hormonal therapy using Eligard… I did extensive research on this drug and all the other ones that are used for hormonal therapy and I would suggest to you is don’t even go there… If I had to do it all over again I would just do active surveillance period!!!! All these drugs are far to dangerous to take specially for someone with heart trouble… See the attached video
Update: Heard back from one proton center. They would require Lupron and would not be able to treat the enlarged prostate. So it looks like RP is the only option. My husband is ok with this decision and it's a relief to be able to stop my all-night research.
Not to add to your decision misery but I am a Gleason 4-3 who did the 5-proton radiation treatment at Mayo. I have a 120-gram prostate and after radiation I feel I am urinating better than before. I am 73 and read that ADT does not make that much difference in men over 70 in my case. I am not sure about Gleason 8. My three-month PSA after radiation was undetectable. I have had no side effects from the radiation other than two five-inch tan circles, one on each hip where the radiation went in. I even messaged the radiation oncologist to be sure thet they gave me enough radiation.
My husband, 71, G8, PSA 8, PSMA PET no spread, has planned surgery for September. He ruled out radiation options because of required 18-24mos ADT. But after extensive reading about less invasive Proton and Cyberknife procedures, I have nagging doubts.
If you chose one of these options w/ G8, did you also need hormone therapy and if so, for how long?
Wow, congrats. I think it's too late psychologically to change course, but just for curiosity I might call Mayo and find out if no ADT is an option for G8. The proton center in San Diego said it wasn't.
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Update: Heard back from one proton center. They would require Lupron and would not be able to treat the enlarged prostate. So it looks like RP is the only option. My husband is ok with this decision and it's a relief to be able to stop my all-night research.
Deleting - duplicate reply
https://connect.mayoclinic.org/discussion/has-anyone-done-proton-without-hormonal-therapy/
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1 ReactionThanks, just discovered this thread
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1 ReactionI wish you both the best but do a follow-up post if you can after treatment.
Readers here are all in full-blown education mode.
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1 ReactionWill do. Surgery scheduled for Sept 7.
Hi I’m 64 and had radiation therapy for 28 days.. after that I went back for my PSA TEST and it elevated by 26 points.. After I found out about this my Doctor wanted me to start hormonal therapy using Eligard… I did extensive research on this drug and all the other ones that are used for hormonal therapy and I would suggest to you is don’t even go there… If I had to do it all over again I would just do active surveillance period!!!! All these drugs are far to dangerous to take specially for someone with heart trouble… See the attached video
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1 ReactionProton therapy is the best option. Sorry your doctor didn't recommend it.
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2 ReactionsNot to add to your decision misery but I am a Gleason 4-3 who did the 5-proton radiation treatment at Mayo. I have a 120-gram prostate and after radiation I feel I am urinating better than before. I am 73 and read that ADT does not make that much difference in men over 70 in my case. I am not sure about Gleason 8. My three-month PSA after radiation was undetectable. I have had no side effects from the radiation other than two five-inch tan circles, one on each hip where the radiation went in. I even messaged the radiation oncologist to be sure thet they gave me enough radiation.
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1 ReactionWow, congrats. I think it's too late psychologically to change course, but just for curiosity I might call Mayo and find out if no ADT is an option for G8. The proton center in San Diego said it wasn't.