Has anyone done Proton without Hormonal Therapy (ADT)?

Posted by mikewo @mikewo, Mar 29, 2023

Has anyone done the 5 session Proton beam treatment without ADT? Any results?

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@narus

Most of my blood work is pdf files but can go back to 2000 but
I never had my T levels tested until after my PC treatment.
Just looking at my PSA over the years you can clearly see my path to PC started about 10 years ago. My PC would have been discovered much sooner had they looked at the rate of rise rather than just the number.
I stop taking T for a month before blood work and it is slowly rising on it's own because diet and exercise and loosing 60 Lbs. I am much healthier today than 5 years ago.
I am also unfavorable intermediate risk and my doctor seems to have trouble explaining exactly what that means.
I have never seen an endocrinologist and my urologist prescribes the T. Not sure what you mean by full PSA is that like a 4K Score.
You certainly have all your medical data in good order as it would take me a while to look up all of it.
I am 67 and if I live another 10 years that is probably enough.

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I am 74 and 10 more years gets me to 84 and 15 to 89 and I really don't want to wind up in a nursing home and all my friends dead like is happening already. If I was 50 it would be an entirely different story and these cancer doctors don't seem to take age into account. The only thing that made me unfavorable intermediate risk was my two 4-3 Gleason cores. My PSA was 2.9 and the number of positive cores was very low and only confined to one lesion area of my prostate. Good luck. My no longer urologist stopped prescribing my testosterone when I didn't want to do a Urolift for my large prostate, so I went to an endocrinologist, and I am so glad I did.

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@gentlemanrancher

I keep reading about the horrible side effects of Hormonal Therapy and it seems it destroys quality of life, increases weight 10%, messes with bone, lose hair, increases pain, messes with emotions etc...
I'd appreciate hearing opinions from anyone who has chosen this path.
One Doc in Ca. suggested just doing it for a couple months...

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Hello, At age 68 and having gone 28 radiation treatments in 2022 along with one 6 month injection of Lupron. The Lupron really messed with my entire being. Very depressed, hard to focus, suicidal thoughts on a regular basis. I cant actually see any reason for me to ever consider that course of treatment again. Today about 7 months after the radiation I am beginning to feel more like normal with my last psa being in June at 0.12. I have decided that should the cancer rear its ugly head again I will take my chances without any additional adt. Other that still being very tired and needing a short nap in the afternoon I finally have ambition to get things done again! I hope that other men have has better reactions to the Lupron than I have. Best of luck to everyone fighting this battle.

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@tlems

Hello, At age 68 and having gone 28 radiation treatments in 2022 along with one 6 month injection of Lupron. The Lupron really messed with my entire being. Very depressed, hard to focus, suicidal thoughts on a regular basis. I cant actually see any reason for me to ever consider that course of treatment again. Today about 7 months after the radiation I am beginning to feel more like normal with my last psa being in June at 0.12. I have decided that should the cancer rear its ugly head again I will take my chances without any additional adt. Other that still being very tired and needing a short nap in the afternoon I finally have ambition to get things done again! I hope that other men have has better reactions to the Lupron than I have. Best of luck to everyone fighting this battle.

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Thank you very much for sharing and I'm going to stop and ask the Lord to bless you and give you good health and His Peace that surpasses all understanding in Christ Jesus.
I just had my meeting yesterday and I am so thankful that the Doctors are so supportive of my logic and decisions. I'm personally not going to do hormone therapy. We only have a limited number of days and I want to enjoy them all and since my health is great... aside from the obvious, I want to stay healthy, increase my immune system and train and eat as if I were running for the Olympics.
It takes a lot of focus, effort and support but I believe this is my best path.
I have been competing in 50 mile horse and running races and now with a new titanium knee I'm going to train like never before while receiving Mayo's wonderful service.
My life time goal is to ride in the Tevis Cup 100 mile Endurance Race so that's my goal and since my race horse is injured, I'm looking for a new "Tevis Horse" to train.
The Bible says "without a Vision, my people perish"...
Grab your vision and go for it.
May GOD Bless All Of You. 🙂
David

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@mikewo

I am 74 and 10 more years gets me to 84 and 15 to 89 and I really don't want to wind up in a nursing home and all my friends dead like is happening already. If I was 50 it would be an entirely different story and these cancer doctors don't seem to take age into account. The only thing that made me unfavorable intermediate risk was my two 4-3 Gleason cores. My PSA was 2.9 and the number of positive cores was very low and only confined to one lesion area of my prostate. Good luck. My no longer urologist stopped prescribing my testosterone when I didn't want to do a Urolift for my large prostate, so I went to an endocrinologist, and I am so glad I did.

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Thank you Mike, good perspective and I also need to lose weight and I hadn't thought of an endocrinologist so I just requested an appt. Much appreciated.

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